Does anyone here have, or know someone with Prolong QT?

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I am looking to meet others with Prolong QT. This is a genetic heart condition that can more often than not be undetected until it causes sudden arrythmia death. The heart goes into arrythmia and can be fatal if not shocked back to normal rhythem. There is no cure. My mothers side of the family carries this disorder. I have it, my daughter has it. I lived with it for 22 years before i knew I had it. It does not show on my EKGs, so therefore it was assumed I did not have it. Not true. Through genetic blood testing it was discoved I do in fact have it. My daughter was tested at birth, and she came back positive. Her drs put her on beta blockers as a precautionary measure. They are supposed to keep her heartrate at a safer level. They worked great until she was 18 months old. One day she passed out walking through my living room. I picked her up, revived her, and she went out again. After the second revival, I rushed her to the ER where they transfered her to the Children's hospital. She spent a week there, while the drs decided what to do with her situation. THe best idea they could find was to inplant an ICD (Internal Cardiac Defibulator) Being 18 months old, she had to have specialists on her case, and they had to come up with a special way of doing things. The ICD was implanted in her abdomen. Lead wires run up to her heart. When she is older and bigger, they will move the ICD up to her chest, where an adult would have it placed. If her heart every goes into arrythmia, the ICD will shock her back to normal, and possibly save her life. Our family has type II. There are multiple types out there. Many sports players who are dying suddenly on the field or court, are being found to have one of the many types of Long QT. I am always looking to connect with others who have Long QT or know someone with it. Please respond if this might be you.