Peadiatritions appointment - UPDATE

Thank-you so much Tara! I'm so excited about this, by the time we left I could have hugged her - for the first time I felt someone was actually interested in Bong and how I felt about his problems and what I want for him. I'm also really glad that your little boy is getting the help and support he needs and is doing so well. Keep me posted on how he gets on please!

Thanks sweetie, I kow just how you feel. Bong has his MRI (general aneasthetic) on Monday about his headaches. I promise to let you know how he goes, we think it's a stress reaction but it's best to be sure, he'll be ok but it's going to be a big day for him.

Lets keep each other posted on how our little treasures get on, they are so prescious to us, other people who do not have children might think that we are somewhat nutty complaining are kids cant concentrate and do what other kids do at their age, they think it's us mums fault, you will soon see now hun as every tiny step is another step towards another goal for both us and our children, and the more we learn about their condtioning the more we understand them, poor little mights it must be hard for then to. xxx

Thank-you so much, your support has been and is invaluable to me. It's exciting to finally get anything other than a label, so it's a good start. A lot of his behavious she feels is self stimulation, which makes sense, we just have to wait and see. Your daughter sounds like Bong on a Buzy day, other days he can be quite lazy, apparently anyone with autism has some dyspraxia which is all to do with motor control. Dr asked about my support system and I explained that a lot of us on the net have kids with different needs so if someone needs a hand we pool our ideas etc. She agreed that this could be a better way than getting support from just one group. I have my fingers crossed about the physiotherapist helping, we've tried swimming lessons - even on a 1-2-1 basis which is expensive and pony riding but he cannot process with the sounds of the water, and once he got used to the pony couldn't sit still, lol so maybe they'll find a way to help with these things too.

Hi! I sure hope they do find a way to help your son! It sounds like you've finally found someone who knows what she's doing! :-) I was thinking of taking my daughter to a pony riding program last summer, but she was only 3 then and I think she would have been too scared. I think this summer would be better for that. She has said she wants to ride a pony, so maybe we'll give it a try. You always have our support here! Feel free to send me a private message if you need to as well. :-)

I hope so too, fingers crossed her promises materialise. Taking your daughter pony riding would be fantastic, 4 is a ver y good age to start, Billy started just being led round the fields and gardens when he was 2 and I when he was 4/5 we started learning together until he wouldn't sit. I want Teddy to go as well but the insurance has changed and I think he has to wiat til he's 4 so it wouldn't be fair to leave him behind, I will be ringing up at Easter to see. I really appreciate the support you all give me here and if I really hit a downer I promise to get in touch, same goews for you, let me know how you daughter gets on with the ponys too!

Thankss Honey, I really appreciate all your help and support, as you already know! I'm so glad your little man is doing so well, I'm lucky the worst I've had to deal with is pneumonia, never an operation. I hope he continues to go from strength to strength, it must have been a terrifying time for your family and I'm glad you found the sunshine again!

You are right, there are so many poor childrens with so many more needs than Bong. I did some days at a special school when I was childminding as part of a qualification I was doing and the range of children was breathtaking. It made me realise how luck I am that Bong is how he is. It's true when they say there is always someone worse of. Talk soon, big hugs!!!!

You are most welcome. The best way to keep you motivated (this is what I practice everyday in my life) when you face a problem, think about the positive things you have. Like, when my son had to undergo operation, I had to take him to another country, cos at that time, in my country, that operation is not that successful. We did not have money. Some how, we were able to collect money, go to India, do the operation and it was 100% successful. I was thinking about the people who cannot go to another country, who has money problems, imagine the kids who have parents who dont care about their kids? So though we have problems, we are lucky cos we have solutions. Good luck and take care.

Thank-you so much for your support with this! Yes, finally some progress if it happens, but I feel better because of the meeting so that's a help too. Unfortunately this lady is only covering Maternity leave so I an unlikely to see her again, but she has made me a 6 month appointment so I can met the other pead and hopefully get some more useful help. My old pead was working so many hours and had about double the workload she should have she was so tired she was falling asleep in meetings. Last time I saw her it was a 5pm appointment and she had to drive back to the other hospital and do some more work and a staff meeting there too, she wouldn't be home until nearly midnight and she had started at 8am after an hours drive to our outreach clinic, she's in her 50's so it's a really long and hard day. Hopefully now there are 2 of them things will improve!

Thank you so much for your encouragement, I have spent so long fighting to be heard and suddenly when I despair I am. I truly hope that this is the beginning of a wonderful time for Bong with the help and attention he needs. It's very exciting for us both.

Thank you so much for your support, sometimes it's hard to know what to do for best but yesterday was a good step forwards, quite excited to get it all in place and see where we go next. I promise to keep you informed. Can I add you to my friends list please the maybe one day I'll there for you too?

Sure you can add me no problem.

Thank-you!

Thanks honey, I'm sure things are finally on the up for him, lol. Why Bong - well Bill-a-bong of course my son is as babby surfie. Why Roo - Edward bear - winnie the pooh - the baby is Roo, lol. I just don't want anyone in our village to be on here and realise who I am, lol.

Yes, the first ever positive day, I'm very excited and feel that finally we are on a road to getting him the right help. I know time will tell but this is a good start. It's not help in school or anything really but it's a step in the right direction, so fingers crossed. Thanks for your support!

Thank-you so much for your love and support - I really appreciate it! Your magic 8 ball told Bong things would get better, lol. He had to check with it beforewe set of bless him. I have a whole bunch of websites to help me now and yours is at the top of my list. I am pleased to find some natural remedies, at least if they are natural if they don't help they cannot harm him. I promise to let you know when something fantastic happens next! bug hugs!!!

Thanks Grandpa Bob, I'm quite excited, finally I have a hope of help for him. I'll keep you all updated of how things go! Thank you for your kind wishes and support! hugs

Hi Sylie, you are almost as excited as me! I just told this new woman I ws fed up with people sticking bad labels on my sweet baby but doing nothing to help him and she was falling over backwards to help the "sweet little poppet who is so lovely" after she'd spent some time with him. lol. Apparently Lincolnshire has an Autism nurse who visits lots of schools - just not ours - YET, they will just have to be happy for him, lol. I don't really know what she does but apparently it will be better for him than the EBSS (Emotional Behavioural Support). How old is your son now? I think you need to find a way to show them you are determined to help him no matter what. Then maybe he will be able to go to the same school as your daughter which would make the school run easier for you. I took Bongs IEP (Individual education plan) an update from his teacher and 3 lists of any symptoms of Autism ADHD and Dyspraxia that he has ever had. with a letter saying how worried I was about school thinking he may be dyspraxic too. How the medication I was given before had made things worse, so I had taken him off it but no replacement was offered. They were meant at one point to contact the speech therapist and kept telling me there was a waiting list until I rang speech therapy nearly a year later and thay had never heard of him. Think I may have hit the guilt-trip button but it has given us hope if nothing else! Bong was 7 in October, his reading has gained 1.1 year and his spelling has gained 2.2 years sice September putting his reading at 8y11months,if he could get his letters the right way round his spelling would be 8y 1month. Getting this much improvement has nearly killed all of us but must be worth it. One of his obsessions is now reading yippeeee! thank-you soo much for your caring and support! I really hope that you can get some hlep for your little man soon.

Thank-you so much for your helkp and support - you must keep me updated too, CJ's been doing so well lately!

Thanks Joey, it has taken 5 years to get this much help, they just like to stick labels on and that's it. He was 2 when this started, bless him, he's ok. I do try my best to watch my kids diet, and you are right it is scary what they put in a lot of foods. I try to make things from scratch as much as I can and have tried removing tomatoes and orange etc from his diet which made no difference to him. I just try to make him eat proper food as much as possible, if I can easily make it at home or it's a brand I know doesn't effect him then it's ok. I'm glad you are careful about your kids foods too, it's important for their future.

Hi Honey, you are so right - I feel really refreshed and able to cope a bit again - hope is indead that greatest of all treasures, lol. I'm sorry Coram has this problem, is that like his brain sends the message but his hand doesn't listen? I think it all joins together on some level. Dyspraxia is all about motor control, gross motor (big movements) and small motor (holding pens, cutlery and using effectively). Its about clumsyness falling over your own feet, falling of chairs, not having fear of falling from climbing too hig, stuff like that. It does effect handwriting because of pressure on the pencil, page etc but after that I get a bit lost. I hope your little one is getting the help he deserves and I'm so glad you are on top of these things. I really appreciate the help and support my friends here all give me when Billy acts out or with sorting his problems. Thank-you so much, I am here for you if you need me too!