Fibromyalgia and medications Do you take?

@raydene (9871)
United States
March 9, 2007 4:02pm CST
I have been reading the posts and have found a number of them mention fibro and sometimes people mention what they take. I have had Fibromyalgia for over 20 years and about 3 years ago I started taking narcotic pain pain relieviers.I am never out of pain but the meds do take the edge off. Do you take meds for pain? Do you take narcotic meds for pain? Do your meds help you? Are you totally out of pain when using meds or do they just take the edge off? How do you feel about narcotic meds being used daily for chronic pain? Please answer honestly I will not be offended if you don't agree with my opinions. Thanks Raydene
4 people like this
10 responses
• United States
9 Mar 07
Regular doctors seem to have a hard time diagnosing fibromyalgia and chronic fatigue syndrom. I've been diagnosed with it by Natualpathic and Homeopathic doctors. I've taken supplements that seemed to help, plus, I think this problem is made worse with depression, as I've notice the more stressed out I was, or the more depressed I was, I would feel the pain and fatigue of these afflictions more and more. I've had to treat my depression, change my diet, I've taken certain supplements that did seem to help (Noni juice is terrific by the way), I've had to adjust my whole way of seeing myself and the world, and gradually I've gotten alot better. Sometimes all I need is Aleve or something anymore. I know B-vitamins are essential. If you haven't seen a Homeopathic doctor, I recommend that you do, from my own experience, they've helped me a whole lot more than conventional doctors.
3 people like this
@CatNPK (461)
• United States
9 Mar 07
I have also had great experiences with both homeopathic and naturopathic doctors. My current doctor as of about four years is a naturopath in addition to having a regular MD, and she is very knowledgable and supportive. My experiences overall have been very similar to yours. Lots of little adjustments, and learning to avoid stress.
3 people like this
@raydene (9871)
• United States
9 Mar 07
I don't know one fibro person that hasn't had a problem with depression.But that's another discussion I will be posting. Raydene
2 people like this
@marciascott (25529)
• United States
10 Mar 07
I just mention some Iron pills they work great for me.
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@raydene (9871)
• United States
11 Mar 07
Thanks everything said here might help someone R
1 person likes this
@Phlamingho (7824)
• Denmark
9 Mar 07
I never take anything unless it's something my doctor says I REALLY need to take in order to get better. I don't want all those chemicals in my system if I don't have to.
2 people like this
@raydene (9871)
• United States
9 Mar 07
Thanks
@patgalca (18392)
• Orangeville, Ontario
9 Mar 07
I don't necessarily consider Tylenol 3 a narcotic. I did take oxycontin for severe menstrual cramps but it didn't really work and it certainly didn't blend well with the Tylenol 3's. I had to make sure they were completely out of my system before I took the Oxycontin. Tylenol 3's help, as well as heat. I think heat helps a lot more. Mag-Citrate helps with every day pain. When I was without it for a week I noticed an increase in pain so it definitely does make a difference. Most of all I think that exercise has made a difference. If I push myself too hard I do feel pain, but easing up helps ease the pain. I walk 3 miles a day so if I am walking too fast and the pain starts to kick in, I slow down and the pain eases up. By the end of the day I can be in a lot of pain as a result of my walk but eventually with Tylenol 3 and heat the pain can be decreased. I just have to make sure I don't push myself too hard with my exercise. I prefer not to take medications but I do take the ones that are necessary - Wellbutrin, Tylenol 3, Naproxen (for sleep) and Prevacid (for Acid Reflux). There are lots of natural products at the health food store that can help for different symptoms.
1 person likes this
@CatNPK (461)
• United States
9 Mar 07
Heat helps me also, from a warm towel out of the dryer wrapped around my sore shoulders to hot baths or - best of all - saunas. I highly recommend saunas for those who have access to one. I have also felt great after every 90-minute session of bikram yoga, which is done in a room heated to sauna-like temperatures.
1 person likes this
@raydene (9871)
• United States
9 Mar 07
Once or twice a year we go to a motel with hot tub and I feel so good when I go. Thanks Raydene
• United States
10 Mar 07
I do not have fibromyalgia but my mother does. She is 52 and has had fibromyalgia for a long time, I do not remember when she was diagnosed. She also has degenerative bone and disk disease and a torn rotatorcuff so basically she is in pain all of the time. Over the years she has built up a resisstance to some pain medications, but now she is on a low dose of oxycontin, some lortab and a medicine called cymbalta. Her new pain specialist doctor person said her old doctor was not treating her in the most effective way so he changed it around, the narcotics she is on are controlled release so that they can help dull the pain more and the cymbalta is to help the depression that accompanies chronic pain as well as help with the pain. So basically, she is in pain every day of her life, and will always have to deal with these problems, but with the medicine, her life is more enjoyable than it would be and she is able to do more things, limited though they are.
@raydene (9871)
• United States
11 Mar 07
Thanks for sharing.I think your mom has alot of the same issues that I have.Give her a very soft hug. R
@CatNPK (461)
• United States
9 Mar 07
I don't currently take anything except the occasional ibuprofen, mostly to help with tension headaches and general body aches. At night I often drink chamomile tea as it helps calm my nervous system, and ginger in various forms helps with my digestion. Exersice is helping a lot. Generally I am in a state of "remission" at the moment, although this winter caused somewhat of a flare up. In the past I took a couple medications that I unfortunately don't remember the name of, but both caused heart palpitations within a couple days. The one thing I have found to work very well was Neurontin, which kept me capable of working on bad days a few years ago when my fibromyalgia was acting up a lot more. It made me a little spacey sometimes, but then that can be because of the fybromyalgia anyway.
1 person likes this
@raydene (9871)
• United States
9 Mar 07
Neurontin was bad for me.I was losing my memory from it.I got lost driving a route I took daily.I had to go off it after about a weeks use. Thanks Raydene
@CatNPK (461)
• United States
10 Mar 07
Like I said, it made me ditsy. I only used it when my fibro was really bad. Sadly, I don't hink any medication can really help - and so many I have taken only make it worse, it nothing else the morning after hurts even more. That is why I decided to manage it pill free, and this is working better than anything.
@AmbiePam (93946)
• United States
10 Mar 07
Although narcotics took the adge off, I felt and so did my doctors, that it would be better to get off them since I had so many OTHER health problems. I certainly understand people taking them. Have you tried Cymbalta? It is an anti-depressant mixed with a pain reliever especially designed for fibromyalgia, in one pill. If you haven't tried it, it might help. But something that helped me very much, was going to the chiropractor. I always thought they were quacks, but this guy helped me more than any of my other doctors ever thought about.
@raydene (9871)
• United States
11 Mar 07
Thanks for the info I'll discuss it with my doc when I next go Thanks R
@cher913 (25782)
• Canada
9 Mar 07
i take otc pain pills such as ib profin or tylenol...and sleep medication...my diagnosis of fibro is out there (had to switch drs due to my original drs retirement). Thus being the case, i have done some research on chronic fatigue syndrome and believe i have that maybe moreso than f/m...i go for an mri at the end of march (then i can go see a rhuemie :-) hopefully he will get it straightened out for me :-) will let you know!!
1 person likes this
@raydene (9871)
• United States
9 Mar 07
Cher,A lot of we fibro folks also have cfs so you may have both. I don't envy you the mri etc.I went through so many tests for so many years and when it came right down to it the pain was still the same no matter what they called it.I also took otcs for many years but they quit working so had to up to narcs.Good luck and I'll be thinking about you at the end of the month. Raydene
@SherryA (77)
• United States
10 Mar 07
My case is quite severe. I take Vicodan, Ultram and Tylenol for it, but as you say, it just takes the worst of the edge off. I take 27 pills a day, so I have to stand with the necessity of the medication. I know how disheartening it can be, but being full in fibro mode is unbearable. I do take vitamins, eat right (sortta) and walk for exercise. Seems keeping the joints flexible helps that and my arthritis. The best of luck to you, honey.
1 person likes this
@raydene (9871)
• United States
11 Mar 07
Thank you for you post and I'm sorry you have it so bad.Hope it eases up. R
• United States
7 Apr 07
I take 50mg tramadol with 500mg acetomenophine 1-3 times per day. This NEVER takes all of the pain away. I don't like to take the medication but due to the pain I can't function without something to take the edge off. There are still days that almost bring me to tears even with the medication. I imagine I could get the dosage increased but I am always afraid of getting hooked. I never thought I would be an advocate for pain medication beyond the OTC's but I definately am now.