Fellow sufferers of Fibromyalgia

YIPES! What i would do is write a letter to her supervisor...this is no way to treat a potential patient!! hope you feel better soon!

That is awful, I would be very angry with her, not having Fibromyalgia and not really in tuned to what this disease causes but knowing that there is no cure, I hope you called the doctor's office afterwards and told them about such treatment to you, that is awful.

Some doctors think that they are God, and the last word. I have come across this a few times. They freak if you talk up to them, as you did. I commend you dear.

I had a doctor who told me Fibromyalgia didn't even exist. I think there should be mandatory classes when people have some sort of medical job. Mandatory on the diseases that are not understood. People just don't grasp the reality of fibromyalgia, if they even acknowledge it at all!

I guess I inherit a lot from my great-grandmother...she was a nurse (no I'm not) but she was involved with natural and herbal remedies, that probably worked far better than the "miracle" medicines of today...since she was a nurse, she could see what a bunch of a**holes doctors were---even if given some medication for any of her problems she never took them...instead relied on nothing but her herbal cures...I distinctly remember her never having anything stronger than aspirin in her medicine cabinet --and she lived to be 98!! Now I too have been in a lot of joint pain lately...especially in my ankles...some days I can hardly walk,..but I refuse to take prescription meds for it..my foot doctor recommended a popular non-steroidal anti-inflammatory med--now before I get a prescription filled (which isn't often--like I said inherit my great-grandmother's traits) I look up to see the side effects involved..and lets face it you start reading them and you don't want to take a thing...well this one is in a group that the FDA recently put severe warnings about...it could trigger blood clots, strokes, and heart attacks...gee, do you think I want to take this?? Think not.. What your "expert" person told you is ludicrous...she might as well have said, "Oh I have an Aunt who used to have diabetes and she's been cured."--Well as far as I know there's no cure for that...is there? Kudos to you for what you said to her, the "expert"---I think more of us should be so straighforward with people in the medical profession

I have came across insensitive and ignorant doctors many times. I have Scleroderma and it is a condition that is incurable. A few times in the past l would allow doctors to bring interns into the examining room, until the last doctor and intern, acted like l wasn't in the room, and handled me like l was a piece of meat. That really upset me, so l don't allow it anymore. I have a long list of run ins with doctors that would totally blow you away. I rather not think of those ignorant episodes. I also find that doctors get pissed off and cop an attitude when you have an illness that they can't fix. They treat you like it's your fault for having such an illness. Try not to let this upset you and make you sick because it is simply not worth it.

It is hard for me to believe that she knew so little about fibromyalgia. My sister has it and has tried everything. The best she is able to do is to keep the pain to a tolerable level. Even I know that this dietician you saw was misinformed about fibromyalgia and I am by no means an expert on it. I know about it because of my sister. Just simply incredible.

Fibromyalgia has been around for centuries. The name has changed several times. It was originally known as fibrositis. You'd think these idiot doctors would know that by now. I really haven't run into any doctors that don't believe in the illness. I've run into doctors who have family members who have the illness. The problem is that fibromyalgia is NOT being taught in medical school. This is why doctors are so uneducated about it. I had two doctors tell me initially that if I exercised in six months I would be better. This was said in front of my husband who thought we can get through six months of this. No, it's a lifetime and those doctor's were stupid thinking that way. I DO find exercise helps me manage my illness but my illness is never completely gone. Also, everyone has a different chemical physical make-up. No two people are alike and therefore will not react to treatments the same way. What works for one person may not work for another. Heck, medications can give one person terrible side effects yet another person may not have any on the exact same medication. You know, if you need a fibro-friendly doctor you can contact FibroBetsy at kindness@fibrobetsy.com. She keeps a list of doctors all around the continent who are only recommended by fibromyalgia patients, not other doctors or the doctors themselves. Good for you for telling your doctor the bad reaction you got from the other doctor. You may want to go above their head though and complain to whatever membership your doctors are with (American Medical Association, Ontario College of Physicians and Surgeons, etc.). I was given a questionnaire by a fibromyalgia organization on doctors who were not good. That doctor has shown up on the bad list. I am not the only one who complained about him. Don't let these people mess with you. You are the boss of your body and you need to be able to manage your illness and it may take many different combinations of things until you find what works for you, but you must do it. I spent five years lying around feeling sorry for myself. That got me nowhere. I now live a pretty good life (though have a heck of a time getting out of bed in the morning) and can cope because I know my limitations and how to pace myself. I wish you much luck in your quest to find the treatment that works for you. Remember, manage the illness, don't let it manage you.

You handled it better then I would have. I would have had a fit and told her off big time. I would have also reported her to her supervisor as well as the insurance company to make sure she didn't get paid. The thing is in most states to be a dietician all you need is a college degree in dietary..you don't need to take any medical courses except maybe terminology or medicines and foods. So her saying she's a medical professional is a bit much. I've run into that sort with different things and my sister who is a nurse has had many doctors try to tell her things that aren't true. They seem to get floored when she mentions she's a nurse and they don't know what to do because they can't overwhelm her with terminology. I've learned that knowledge is power and the more one knows when we go in the better off we are.

I have never run across one that was that bad. I don't really consider a dietitian to be a part of the real medical field...maybe loosely associated with...they are merely nutritionists. At any rate she was commenting on something that was outside of her field, and I would venture to say that you were more of the expert there then she was. When you experience something first hand, it gives you a full understanding as to the symptoms and what the condition really does. Those of us with chronic conditions may not understand the cause, but we sure understand the results and symptoms in a way that even the ones who treat us cannot, unless they also have the same condition. Good job in standing your ground against this idiot...

my cholestrol and blood pressure down... i have a low or normal cholestrol and blood pressure i still have Fibromyalgia so,that is so not true! dont believe it,please and there is no cure for it. exercises are good,but is no cure

It's terrible to go through such a consultation. No wonder it is free. Maybe she's the reason the consultation was free. My mother had cystic fibrosis. They had to operate on her. Another friend of mine had the same thing and went through operation as well. I'm not too informed about Fibromyalgia, but since as you said there is no known cure, it just go to show how ignorant that lady was. You are better off without the consultation anyways. - Lyn

I had a friend growing up that has xeroderma pigmentosa, or an easier way to say it, she is allergic to the sun. Not too many people out there have this condition either. When we were teenagers, she was also diagnosed with Fibromyalgia as well. She went through many doctors who all thought she was an addict to pain meds. She wasn't, she was in pain and wanted it to stop. Not the meds to stop the pain, but a real live cure. This was at least 15 years ago, so you can imagine what the doctors were like. She finally found a doctor that diagnosed her, and she finally felt at least like someone understood. It is awful what we go through with doctors.

I am an RN and I can tell you there is no know cure for firbromyalgia and she needs to be turned in to her superiors. I think you need to call the place where she works and demand to talk to her supervisor or director. Even if you are wrong no one in a medical field or a teaching field should teach another person that way. She needs to be knocked down a few notches. I also would take to your doctors office and tell them not to send any more of their patients to that dietician. What a witch with a "B". I cannot understand when anyone would treat another person that way. Now she is just a dietician and not a nurse or a doctor. Me being a nurse would never presume I have all the answers and would have approached the subject a different way. I would never tall someone "I am in the Medical field and I know more than YOU do". Please call those people and get the dietician some lessions in patient teaching.

Correct me if I"m wrong, but are dieticians MD's? I don't think they are, so they shouldn't be giving any medical advice/recommendations. I see this post is a bit old, but it may not be a bad idea to call up that dr. and tell him what happened and tell him you don't think a "non-MD" should be giving contradictory medical advice nor should she be having such an attitude because you disagreed with her. I would also tell him (and follow through with it) that you plan on filing a complaint with-whatever the hell the name of the group that governs over dieticians. She was clearly wrong in my opinion. You said it's a clinic, and if they're all part of the same "group", and she may have had other complaints as well, yours might be enough for them to send her butt packing :) Some people are just so stubborn and never cease to amaze me at their stupidity!!!

A cure for Fibromyalgia pain? LOL! I've had this illness for 20 years now. It never goes away and there is NO cure. If someone can stretch and exercise to get the pain to go away, it sure as heck isn't Fibro. There is no such thing as "Fibro remission" or "I've been cured." The person probably had a pulled muscle.

*chin hits the floor* ARE YOU SERIOUS?? Wow...well kudos to you for keeping your cool for starters cause there is NO WAY IN HELL I would have! and secondly, I agree...she needs to go back to school and educate herself.....OOOOOH docs like that tick me off something awful!

LOL don't you hate when that happens. I would like to ask her WHY then do I feel like worms, bugs and mice are craweling under my skin.

Your dietician was way off on this one...yes treatment options such as certain exercise will eleviate but not cure Fibromyalgia, so just because her aunt was feeling better does not mean she was cured. She just found something that helped her eleviate some of her symptoms. You were in the right to be flaming mad, and she may not need more education, but a lesson in proper communication with her patients.

U did a great job,craftcatcher!