The Ongoing Dustin Saga

Just words of encouragement here as I have never dealt with this kind of thing and I won't pretend to know what it's like. My thoughts will be with you and your family during this and I hope they will find out what is going on with him...knowing is better than not knowing, right? If he does need to stay a while I'm sure you'll be there with him again soon...if he doesn't need to stay long then he'll be home in your arms again soon.

I will say a prayer for him! Insist on getting the best treatment for him, it is very important! I get spasms that are sometimes painful, and had one seizure a few years back! I am sure it was caused by a medication that I did not need, and that is known for causing seizures in certain people if another medication is not given in conjunction with it! Maybe somebody will have to sleep in with him when he does come home. There is a machine that can help people with sleep apnea!

Hun I'm so sorry to hear the hell that your going through, your a damn strong woman to be able to hold yourself up so high. Just be thankful if they do find something, because at least they'll be able to treat it now rather than not... These things are hard, and though I've never been through what you have with your little boy, i can feel your pain. I'm here if only you just need to talk. luv ya hun

Hi, lecanis. I am so sorry that Dustin is going through this again. It seems so unfair for a sweet and innocent little boy to have these medical problems. I hope that your husband finds some answers in Wisconsin. You have been quiet since you posted this so I hope all is okay. Please keep us updated. I am praying for your family.

Hon, you just hang in there and know you're in my thoughts and prayers. I sure hope they keep him until they find out for sure what's going on, as hard as it has to be for you to be away from him. I don't have anything close to relate to you from my experiences other than, as I think I mentioned to you before, my grandson had seizures when he was very young, he also stopped breathing and turned blue a couple times which if I'd have been there I'd have totally lost it. For him they never found anything wrong and they simply stopped. Make sure you follow our friend Pro's advice and don't overdo things, take care of yourself! Keep us updated when you get a chance. HUGS!! Annie

Lecan, don't overdo it. I'm worrying here too. You know you are more than welcome to share your experience here. I don't know what its like, but I say don't overdo it... first thing that came to mind. At least you'll get friendly support from me and others that show up here. Hopefully the doctors will find something finally instead of just new questions... I've thought of something else about Dustin and maybe even your own apnea. It could be a Vitamin D and/or a B Complex (maybe folic acid and B12) deficiency. I know I'm not in the profession, but its still something to bring up since anything could help here.

I am sorry that you did not get to go. Just remember, at least now you are going to finally get someone to tell you what is going on. Hopefully he will be home with you soon. Just remember you are doing this for him. Keep yourself busy. Hopefully your husband will call with good news soon.

Oh sweetie, I wish I was here for you, I am three days behind in my emails. What happened, do you have any word from your husband, is your little boy home. My prayers are with you hon, I want that little boy to have a normal happy healthy life.

This is the time I wish I could give you a hug personally .So I guess you have to settle for my best wishes online.Did they ever do an allergy test on my man Dustin? I hope everything is going as well as it can go. If you need to talk, shoot me a private message. Take care.

SOrry to hear that hon. It is very difficult when one of our children semms to be in a situation where we really don't know how to help. I am glad that he is going to have more tests done and hope that they can find exactly what is happening and how it can be fixed. Sending you a big hug

AWW!! Now that is really bad having to leave your son when he is hospitalised. I don't know if I could manage something like that ...I know that you are really strong and I guess Dustin takes after you in that trait. Don't worry.. hopefully atleast this time they will find out the actual cause and be able to get him real treatment. I will keep your family in my special prayers. Do keep us posted.

Oh lecanis I don't know what to say, except with further testing I do hope they finally find out what is wrong with Dustin so he can finally get proper care and treatment. I feel so sorry for that little guy as he does seem to be a trooper with all that has happened to him...my prayers go to Dustin and for you too..(((hugs))

My thoughts are with you and beautiful Dusty. Hang in there hun all will work out the way it is supposed to. He will hopefully grow out of this. Think positive!

my thoughts are with your family....i have a little son 20months old and i can`t imagine going through something like that. so i think you are very brave. good luck to you and your little one, and gods blessings.

Oh man! I am sorry to hear all that! I have sent out some good thoughts for your little boy.. I hope this time passes quickly, that they find what is wrong and also definite steps to remedy these things. ..all the best..

Ohhhhhh, I'm so sorry to hear this all again, my friend. It seems that you spend your life on tension, wondering what will happen next. It must be very trying for you. I'm a bit lost for words here, but at least they've agreed to keep him in hospital and continue tests. He's in good hands, Sweetheart. All I can suggest is that you try to relax... get your lavender buds out and put some in each room, to help with this. Just remember, if you need to talk or even just a shoulder, then you have many friends here in Mylot, including me, who will be here for you, at any time. I will certainly be keeping him in my thoughts, lighting a candle for him and his Mum and Dad, and sending very positive healing energies his way. Meanwhile, here's a big (((((((HUGGGGG))))))) for you, in the hope that you receive some positive news very, very soon. Brightest Blessings, in perfect love and perfect light, that Dustin finds increasingly better health soon. xxx

I am wondering what you are doing right now, what you are thinking and what you may have heard yet. Sweetheart you know we are all with you in our spirits, our thoughts and our prayers.

My heart just aches for you lecanis. It has to be a nightmare that you can't wake up from. Actually worse, I'm sure. Please know that my thoughts and prayers are with you and your son. I hope the doctors can figure out what is wrong with him and finally get the treatment he so badly needs.

It's been seven hours since you posted this. So I don't know what the situation is now. If you are still alone, then I can imagine your state of mind and so identify with it. What words of encouragement can I give you that everyone here before me in the last seven hours hasn't already given you? So I will tell you my story instead. Several years ago my youngest started to spontaneously bruise, here and there. I didn't see it happening, just noticed them at bath time and put it down to roughousing with his brother. Several days later I was standing beside him holding his hand at a traffic light and happened to look down and right before my eyes I watched a ring of small bruises burst the surface of his skin like purple chain appearing around his neck. It freaked me out. I got him to an emergency room right away and after hours of waiting and pacing and test after test and crying and being pricked and prodded while I watched helplessly through the glass, I was told he had ITP. That is a condition some children (and rarely adults) get after Chicken Pox. It is a lowering of the white cell platelets to the point of them disappearing and it is often fatal. He was immediately admitted and put under observation as there is no (or wasn't at the time) cure or bonafide treatment. Over the next three days his levels kept dropping and dropping and pretty soon they were looking for a bone marrow doner. None could be found to be a match. A young intern spoke to me about Gamma infusion. The doctors all said, no, no, it's dangerous, they won't even use it on children in the U.S., blah, blah blah! I was frantic and angry and insistent. Finally after signing form after form absolving the hosiptal of liability, they gave my son the treatment. A litre bag of clear liquid on a drip into his arm. It took hours to become empty that bag did, and I watched every drop, drop while my precious baby lay in bed and stared along with me in total abject fear. He was tested some hours later for a rise in his platelets. And then again, and then again. No change. My baby was becoming lethargic, so pale and clammy, and his eyes - oh god his eyes! So round and enlarged and the pupils so dilated. I begged for another treatment. They said no. We argued. I signed more papers. He got it. Hours later he was tested - his levels were up a bit. Every four hours for the next two days they took his blood and every time the levels were up. By the end of the week, his levels were normal and I was able to take him home. For the next 8 months, every week I took him in for blood tests and his levels stayed up. Funnily enough, he hardly bruises now, no matter what the trauma to his skin. But he is alive, healthy and remembers vividly his time in the hospital and why he's so afraid of needles. My thoughts are with you and yours lecanis. Please let us know how your beloved Dustin progresses.

yes, for me, it is true that .