Special Needs Children

United States
June 6, 2008 8:32am CST
I have a six year old son with special needs. Are there any parents with children that have special needs? How do you cope?
2 people like this
4 responses
@vicki2876 (5636)
• Canada
6 Jun 08
I am a single mom and I have three children, daughter 12, and sons 9 and 6. My middle child has special needs. He has vision and speech difficulties also social challenges. Other medical things as well but we have had a very difficult road to this point. But I have to say it does get easier. I work at my sons school helping the special need children. How old are your children? What areas are you having the most difficulty with? Do you have a good support system for them? One thing that I feel is a blessing is that having a child with special needs has taught me to appreciate all successes big or small in my children's life and my own. Good Luck!
2 people like this
• United States
6 Jun 08
My son is six years old. He was born three months premature. He has asthma because of the time on a vent. He has developmental delays. He was just diagnoised with autism/mental retardation. I think he is getting harder to care for the older he gets. Right now he repeats everything over and over again. He will call "mommy" non-stop for hours. I am having a real hard time coping. He is in a learning support classroom in school and will continue through the summer. I am in the process now to get him set up with therapies to help his developmental skills. He left my house two times, he just wanted to go out and play, but he wandered away from home. I had to call 911 for help finding him. So now, I have child locks on every door in my house so I know where he is at all times.
2 people like this
• United States
6 Jun 08
Special needs can include a wide array of issues. My 7 year old daughter is autistic, with food allergies. There's no coping needed. We do what needs to be done. She also plays the Violin, loves computer games, and loves to be outside. My 3 year old son also has special needs. He has food allergies, is very speech delayed, and has sensory processing issues (he's just shy of an autism diagnosis). Again we just do what we need to do. IEP meetings, Dr apponitments, therapies...They're not extremely exciting, but they're part of our life. We take life one day at a time. I always have a goal date as well. For example; My son went to the GI on June 2nd, and our date to go over test results, food diary, and next steps, is July 7th. So every single day, I remind myself that I have lass than a month before his belly issues will worked out. With every Dr I ask them what they would like to see, and when should we follow up. We only deal with things 3-6 months at a time. Good luck.
1 person likes this
• United States
6 Jun 08
Wow! You seem to have everything under control. I guess, for me, I try to look long term. I am going to try what you do, shorter periods of time. I have a six year old son that has been diagnoised with autism/mental retardation. He is six years old, but developementally about two years old. So he also has the IEP meeting, therapies, doctors, etc..I get so upset because certain services aren't covered by insurance so I have to go to another provider, one that will accept his medical assistance he recives through the state because of his health issues. I feel that his health is all that matters, so why do these insurance companies make it so difficult for him to get the proper services?! I admire you for all you do for your children!
1 person likes this
• Canada
8 Jun 08
I am not a parent, but I was a child with special needs. I am legally blind, physically challenged, and I have Aspergers' syndrome (mildly autistic). My parens coped by treating me as normally as possible, and incouraging me to be as independent as possible.
1 person likes this
• United States
8 Jun 08
I agree with the previous poster, I don't really consider it "coping" at this point. Some days, we are in survival mode, damage control...but most days just are. In the last 7 weeks, one of my sons has had two one- week hospital stays and just last week he was put under general anesthesia twice, once for a minor procedure and once for a major surgery... when we have weeks like those...we are in survival mode. Now that its "over" (ha, for now), we just go about doing what we do. All three of my boys have special needs. All have a genetic form of epilepsy (two of them have an additional genetic epilepsy diagnosis), they all have a bleeding disorder, one is visually impaired, one has cerebral palsy, brain damage, cardiac problems, is on the autism spectrum... and they are all amazing boys. They're happy, they LOVE life. We have learned to simplify. I no longer make plans a month in advance for outings to the zoo with friends, for example...I just don't do it, it stresses me out and I refuse to do it. We live on a farm and we homeschool and we lead quite a simple life. I cook from scratch, the boys do farm chores, if someone is having a bad day, they get excused from part of a day's chores (if they are having a bad day with seizures or illness...not if they are in a mood! LOL), and if they are feeling better, we get up and do what needs to be done. I don't allow the word "can't" in our home...any of my boys can do anything...they may need help with it, and I am more than willing to help, but there is no room for giving up or throwing in the towel allowed. My guy with the more serious issues sometimes is unable to communicate...when he gets like this, he sometimes can sign to me to get his needs met, but sometimes, he just needs to be left alone for a while...get re-centered and he "comes back"...could be a seizure, could be on the verge of a meltdown...whatever the problem is, it works itself out. I've never NOT been a mom of kids with extra medical needs...so I don't know any other way. In fact, lol, my first were twins so I had two with extreme special needs right off the bat...jump in with both feet....
1 person likes this