Autism

August 13, 2008 10:42am CST
I have a child who is 3 almost 4 and he was dianosed with low functioning Autism. he is going to a early preschool and the school is tring to rediagnose him and I am not sure how to handle this. I feel like they are pushing him aside because he has had early help and is beginning to socialize better. If anyone has any advice I am always open to suggestion. We are in Indiana and I really dont want to see my little man get pushed farther behind. We moved here from a military base and we had all the help we could ask for but now that we are in the real world we seem a little lost as what we can get for him or do for him to make his life a little easier.
3 people like this
5 responses
@Foxxee (3651)
• United States
14 Aug 08
Well first off, the school can't rediagnose him. They have no part in that. I would contact the person that diagnosed your child first and ask them to do another intervention because it could be that your son is improving, but he still needs therapy and so on. My son is almost 3 and he starts preschool this year for disabled children himself. He was diagnosed with Autism in April, but we have always suspected it and he has been in Early Intervention since 15-18 months. I also wanted to point out that he is somewhat improving, but he still needs therapy. Autism is a life long disorder. Another thing is, the school can't do anything without your permission or consulation. On the other hand, if your son was diagnosed with Autism, is there a chance he was misdiagnosed and maybe just had a delay? If you don't believe that, then tell the school to leave it as it is and your son has been diagnosed and to leave it as it is. If the state wants another evaluation then go with that, don't let the school bully. Our son has evaluations every 3-5 years.
2 people like this
14 Aug 08
he was diagnosed and had his IEP in CA now we are in Indiana. The school doesn't believe that he is "that bad" as his IEP states. They saw him for about 5 minutes and ormed there opinions based on that, and do not want to extend the same services he was already getting previously (read they want to change his routine and daily schedule) even though the IEP contains all of his testing and assessments from the SLP, Pyschiatrist, Behavioral Pyschologist, Neurologist and his teacher from last year. That is the problem we are running into. They want to redo his IEP and just use the information they obtained when they saw him for about 5 min, not use any sort of testing or anything like that. Any help would be greatly appreciated.
2 people like this
@Foxxee (3651)
• United States
15 Aug 08
Do you have an Early Intervention program there? If so, I would contact them, they could help you out. And is there any way you can get a hold of the person that actually did the diagnoses or someone from where you guys moved from so you can fill them in, they might also be able to help. Maybe they can talk with the school themself.
1 person likes this
15 Aug 08
it is the early intervention program, that is saying he does not qualify anymore. However not more than 4 months ago he had an IEP that states he needs SLP and assisstance with social interaction, among others. That is the part I do not understand.
1 person likes this
• United States
14 Aug 08
Hi JS I would not worry about having your son rediagnosed. If the School feels he either is improving or may have other needs that he may need to have met. My son just turned 16 and I have been down that road you are about to travel for many years. You see my son has high autism trates, low muscle tone , devolpment delay mild palsy. He started school at the age of 3 .. they wanted him to start when he was 2 years old.. I refused becouse I thought no one would understand him. he did not start talking untill he was 7. Now he won't be quiet LOL. The schools do play a big part with your son. The teachers are trainned to handle such children as ours. My son had gotten rediagnosed many times. Don't be upset about it. The More you can learn threw this the better off you and your child are. They are not pushing him aside. It's a great thing you started to get him help early and you can thank the school for his social skills improving. My son had and still in some ways has social behvior troubles. I't up to you the parent to talk to the schools on how you can work with them to improve his needs. They are there to help you . My son started in a special school for children with disablities and now goes to a regular high school in a special ed class. He goes to day camp every summer and loves it. Learn all you can .. get a social worker who will help you get help for you sweet child and even the state will help you finacially. Face your fears head on its the only way you can help your child ask all the questions and fears that you have, the teachers you willlearn will become your dear friends. Like my son I am sure yours may be the same way , is much diffrent in school then at home. I am still learning and have been dealing with this since my son was 3 months old and I still have a lifetime ahead of me .. I wish you well stay strong :)
2 people like this
@acevivx (1566)
• Philippines
14 Aug 08
Did you try to sit down with the sachool authorities or teacher in charge to discuss your child's situation when you enrolled him? I f not why don't you try to seek audience with whopever is the proper person to talk with and discuss your concerns with him/her. It's possible you are not reading the situation right or that they don't know the real score with your child. For your child's sake try to do it as soon as possible and explore with them what can be done.
@manunulat (604)
• Philippines
14 Aug 08
I understand your feeling as a mother. I learned that Autism is best diagnosed early in order for the caregiver to provide the necessary needs of the the child. I'm not sure what you mean by your child being re-diagnosed in pre-school. You have to realize that Medicine and Special Education have different modalities in coming up with the right approach to cater to the needs of your child. Pediatricians are most concerned with physiologic health and development while the SPED is most concerned with the optimum level of functioning of your child. I would like to point out that both of this discipline is not in contradiction but best supplements each other. How to meet it is in your hands as the primary caregiver because most of the decision-making is on you as parents. My suggestion is for you to ask questions and be more involved with these modalities.If there are any groups of parents who have the same condition like your child, consider being a member. In that way, you can have a wide array of ideas on how to handle related situations. Further, you can be more empowered and you will have additional support system. There are websites also that are accessible. You have to equip also yourself, together with your husband with some information that could be vital to your child. If you feel that your child has been stressed so much, you have to ask and ventilate your concern to the secondary caregiver. He or she could explain to you the rationale behind the approach and that is important so that you may also learn to reinforce it when you are at home. I know it is not easy but you have to be pro-active at all concerns, not only you as the mother but also with your husband.
• Philippines
13 Aug 08
hello, i use to work as a school based Occupational Therapist and had dealt with childern with autism for quite some time. the triad that is always present in autism includes speech/language delays, styreotypic behavior and some problems with socialization. It is always good to have a 2nd opinion, for who knows, he might just have some delays and is not really autistic. Dont feel too uncomfortable about the re-diagnosing, maybe they just wanna make sure that the appropriate program is given to your child. As long as he is not discriminated, im sure it will turn out okay. its good that he is improving his social skills. continue to bring him to playdates, expose him to a few social gatherings and encourage him to be with other children. Im sure you'll do good in raising him. i dunno if i made any sense, but if you need any help or tips, im willing to give you my time and all that i know.