I haven't been feeling well part 2
By Shaunee
@Shaun72 (15959)
Palatka, Florida
October 11, 2008 1:00am CST
After having stiffness and numbness since the first of October. I called my nerologist this past Monday to tell them I was going to go to the emergencyroom at Shands Jacksonville. A lot of good that did. I was there from 1 pm untill 4 or 5 am Tuesday morning when i finally got in the emergency room my right leg and arm where both numb and my right leg was dragging. Some doctor or a doctor in training who was a jerk asked me whay did I wait to come in so early in the morning. So i told him excuse me I have been sitting in the waiting room since 4 am. He acted like he could care less about mypain and then when i finally got a nerologist. She told me that she would get me set up to have a dose of solomedrol which is steriods in a i.v.. Tuesday i got a call from someone saying that I would get a call back really soon. I never did.Untill this morning.
In the mean time i had a appointment with my regular doctor. He was off but his nurse practioner gave me a weekly dose of predizone or steriods that you take by mouth that helps my body with numbness. It seems to help a little. I haven't stayed this numb for this many days in about 3 or 4 weeks.
So today my nerologists nurse calls to tell me I can't get any oral steriods from my nerologist untill I come to see him. Someone somewhere at that hospital got things really mixed up. I called back and left a message on the ansering machine that my I got a steriod pack from my primary doctor. I wish so bad I could find a good nerologist in my town. This one is over 2 hours a way and then ater sitting in the hospital i get sent away with nothing. I am just glad my regular doctor sent me home. I thought I really liked this nerologist since he sent me to have physical therapy and to have eye surgery but now I think differsnt. Something got misunderstood somewhere.
6 responses
@Shaun72 (15959)
• Palatka, Florida
12 Oct 08
Mike is very right. My ilness affects my brain . Is other words the lessions that me and Mike get in our brains cause us problems with our nervous system. That is why my body had leg pain and then it went numb. Nothing like a metal braclet will help. I tried using one a log time ago for pain. Our illness is hard to understand to begin with but I was upset how the hospital I went treated me last week so I started a post about it in here.
@scorpiobabes (7225)
• United States
13 Oct 08
Wow I'm sorry you received such poor treatment--reminds me of MY experience in 1994. I had numbness and partial paralysis on my right side--it happened on a Thursday evening but I didn't go to my primary doc until Monday night. She thought I had a stroke and told my husband to take me to the ER while she called me in. Unfortunately there was a mix up and I wasn't admitted until 1 AM. I wasn't diagnosed until 4years later and didn't have another relapse for over ten years (beginning of last month!), but the first hospital I went to to find out what was going on with me, only to get diagnosed by a nurse WHO TOLD ME IT WAS STRESS!!! OMFG--I'm presenting with the entire right side of my body numb (including my tongue!) and you think it was stress??? Are you out of your everlasting mind?!?! Sheesh! This time around I got an IV of solumedrol which helped me immensely. I'd suggest calling the National MS Society and asking your local chapter to recommend a neuro closer to your home, as well as let them know about how your current neuro treated you. I wish you luck!
@MamaRain (18)
• Canada
13 Oct 08
Shaun I am so sorry that you went through this. When you are in the .R. they should tell you if there is any change to let them know. Then if your numbn ess began spreading you could tell them and they'd realize this is still an enhancing lesion, or more... And you may have gotten to a doc a little faster;) You should have been set up with the solumedrol right there but it doesn't surprise me that you ended up basically getting nada. Best thing to do is go in taking notes as you go - take names, note times and activities e.g. tests and questions yada yada. You can also ask for their findings so you can get it to your doctors FOR SURE! You can do all of it with sugar too, that is not cop a tude as you're doing everything just tell them you've run into problems relaying things to your doctors after the fact and so you keep note for them.
The oral roids are awful and I so hope you get the i.v. ones ASAP. I'm considered a parplegic after several attacks of numbness through my legs over many years - I so hope you get to the physio and let them help with this too!!!Oh and grapefruit and roids do not mix it nullifies the med - check it out, I used to drink the juice and had no idea until a few years ago... just a heads up
@Shaun72 (15959)
• Palatka, Florida
13 Oct 08
I ended up getting oral steriods from my primary care doctor. I am just mad because of the mess I went through waiting. I first thought my numbness was from diabetes since both of my parents have it. Untill it lasted for over a couple of weeks traight then I sort of knew then something else had to be wrong. Finally in 2002 I got diagnosed after having double vision twice and also having numbness a lot and losing my balance a lot over the years.
@aseretdd (13730)
• Philippines
13 Oct 08
That is very sad to know... i hoped that you would feel a lot better now... since you starte the first part of I Haven't Been Feeling Well... my daughter is already feeling fine... no more fever and cough... and she already regained her appetite...
I will continue praying for you... and the main one in my prayer is for you to find a good neurologist... my boss had a problem with her first neurologist... and she found one that did her a lot of good... since she is sleeping well nowadays...
@angel_of_charm (4134)
• Philippines
13 Oct 08
didn't they say anything about the numbness? of why your feeling this numbness...you might wanna have a second opinion with this, it seems like they don't actually know what's going on with you and there must be a reason why your feeling this pain...
@Shaun72 (15959)
• Palatka, Florida
13 Oct 08
I have Multiple sclrosis and I have hadd it for over 5 years now. That is what caused my numbness unfortanly the jerks at this hopital didn't take me likt I thought they would since my nerologist is with this hospital. I ended up going to my primary doctor to get steriods. The pain from my legs the first discussion i strted and why my leg was straight was a part of multiple sclrosis. I just didn't know it untill I got to see my regular doctor
@deeesfamilyvalues (318)
• United States
13 Oct 08
Wow Shaun that is scary. Please rell me a couple of things. Before you were diagnosed did you have tingling and a wierd feeling in either side? This is going to sound wierd, but bear with me. I just started having this wierd sensation in my left side. I won't steal your post here, but just give me a shout or a PM if you wnat. I sure hope you find a good neuro. You can't wait on that one. I know IV drips are so much faster and you get better relief from them. Prednisone burst and tapers take a lot longer to work. You should contact the hospital and dicuss your treatment with patient advocates. It is a shame our medical system is like this. Take care of you!
@Shaun72 (15959)
• Palatka, Florida
13 Oct 08
Yes I would get it from time to time on both sides. I remember one time a couple of years before I got digonesed I had numbness on the whole right side of my body. I worked with it and everything. It finally went away. At the time I didn't have any insurance to go to a hospital to get a MRI to find out what was going on. i went to a few dovctors. I thought I might of had diabetes since both of my parents have it. When I had double vision for the second time I knew then I better get somewhere to find out what was going on. finally in 2002 I got diagnosed with MS. You are right IV drips are a whole lot better but this is all I can do for now. It has worked which is good. Of course I haven't had numbess since 2004 or 2005 so I have done really good. If you have any other questions private message me.
