@MamaRain on myLot

Shaunee @Shaun72 (15959) • Palatka, Florida 11 Oct 08

After having stiffness and numbness since the first of October. I called my nerologist this past Monday to tell them I was going to go to the emergencyroom at Shands Jacksonville. A lot of good that did. I was there from 1 pm...

eye surgery

ms

numbness

stiffness

6 responses

MamaRain Shaun I am so sorry that you went through this. When you are in the .R. they should tell you if there is any change to let them know. Then if your numbn ess began spreading you could tell them and they'd realize this is still an enhancing lesion, or more......

12 Oct 08

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1 comment

rajeshpalakkad @rajeshpalakkad (1450) • India 23 Jan 08

Are there two types of MS - Relapsing and progressive? Which one is common? Whats the difference?

5 responses •

2 people

MamaRain Actually most common is Relapsing Remitting as most people are first diagnosed with this type until a history shows they have otherwise. Generally people first dxed with RRMS will progress to secondary progressive MS in 7-10 yrs from first dx. There are...

24 Jan 08

MamaRain @MamaRain (18) • Canada 13 Mar 07

Hey people, Just thought I'd start an educational discussion on this seeing it's MS awareness month people should be made aware!!! haha Do you know there's a new Messenger thing through the NMSS website where money from...

multiple sclerosis

5 responses •

4 people

MamaRain See it's not just complications like infections but it could be a seizure in the wrong place or inability to breathe or swallow... And in North America every now and then you catch commercials but you're so right there need to be more so people actually see...

7 Jul 07

abrundell @abrundell (51) • Australia 10 Mar 07

i have been diagnosed for about 3 years and would like to hear other peoples stories about their MS. i am currently on day leave from hospital i have been in there for 3 weeks already and have another week to go. its hard to be so...

ms

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3 people

MamaRain Hey you, guess what? They have a pediatric MS clinic in my city! So your age is not uncommon especially these days. If you go to MySpace there are groups for younger folks with MS even!!! Check it out it may be good for you to see more people who are...

14 Mar 07

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1 person

Bee1955 @Bee1955 (3882) • United States 14 Mar 07

Multiple Sclerosis is a scary disease. One day or week you'll have horrid symptoms, the next few months you'll act like nothing happened! Then one day - boom! - you are going blind, cant walk, or even hold your grandbaby. MS IS...

ms

multiple sclerosis

walk for the cure

6 responses •

3 people

MamaRain I'll be at my MS walk in my scooter this year with hubby and baby. I volunteer to be a cheerleader bascially while hubby does the walk with baby and team. I am 32 have RRMS have done intramuscular injections and been a guinea pig and tried alternatives now...

14 Mar 07

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1 person

MamaRain @MamaRain (18) • Canada 13 Mar 07

Hey people, Just thought I'd start an educational discussion on this seeing it's MS awareness month people should be made aware!!! haha Do you know there's a new Messenger thing through the NMSS website where money from...

5 responses •

4 people

MamaRain Hey there, Not trying to scare people just put out the reality and get people more serious about it maybe making the respect it more than anything else. And no it's usually due to infections like the lovely urosepsis I had back in November/December out of...

14 Mar 07

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1 person

MamaRain @MamaRain (18) • Canada 13 Mar 07

Hey people, Just thought I'd start an educational discussion on this seeing it's MS awareness month people should be made aware!!! haha Do you know there's a new Messenger thing through the NMSS website where money from...

5 responses •

4 people

MamaRain You're very welcome. I'm 32 and began my MS journey at 20... my relapses have been basically every 6 months from the get go and I have been in a wheelchair and even bedbound and I am RRMS... No matter the type directions can be different for all of us. None of...

14 Mar 07

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2 people

MamaRain @MamaRain (18) • Canada 13 Mar 07

Hey people, Just thought I'd start an educational discussion on this seeing it's MS awareness month people should be made aware!!! haha Do you know there's a new Messenger thing through the NMSS website where money from...

5 responses •

4 people

MamaRain Well it used to be (in North America) that it was like 1 in 100,000 had it then 65,000 and now... hold on to your hats... 1 in 1,000 why? because it's very hard to diagnose and now doctors and diagnostic tools have gotten better!!!! Also generally the age...

13 Mar 07

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1 person

MamaRain @MamaRain (18) • Canada 13 Mar 07

Hey people, Just thought I'd start an educational discussion on this seeing it's MS awareness month people should be made aware!!! haha Do you know there's a new Messenger thing through the NMSS website where money from...

5 responses •

4 people

Bytemi @Bytemi (1553) • United States 3 Jan 07

Hi All, If you are reding this I am assuming that you have MS or you are a caregiver for someone with MS. I have tried all the medications available on the market: 1. Betaseron - The suicide Medication, it made me cry for...

chronic illness treatments

ms

multiple sclerosis

treatments

3 responses •

2 people

MamaRain I don't know what all went on with the meds/depression stuff whether you tried anti depressants with them or not but all that aside have you looked at being a guinea pig? Or trying an alternative? If you consider an alternative I suggest checking out LDN aka...

13 Mar 07

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2 people

ricknkae @ricknkae (1721) • United States 12 Mar 07

So I was wondering when you think would be the best time to put my baby in his own bedroom ? that is to make things as smooth as possible ... Is there any age more favorable for such transition ... or on the other side are there...

24 responses •

3 people

MamaRain Well hey there, My baby is nearly 2 now but at first we kept him in our room in a co-sleeper which made it so handy... But when he got to big for it he went to his own crib in his own room just 5 steps away. It was nerve racking at first but totally fine. I...

13 Mar 07

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1 person

MamaRain @MamaRain (18) • Canada 9 Mar 07

How do you like this? Does it make you feel like good weather is even closer? It does for me I love this! 2AM EST is the change for us here will have to update all my electronic doodads but I'm sure it won't be too hard :o)

daylight savings

1 response

Bangalorean @Bangalorean (1282) • India 9 Mar 07

My wife is carrying and is 4 months pregnant. As we stay alone and no other member in the family and i cannot afford a servant at home, am forced to do all the daily chores at home. My wife hardly does anything, she does not even...

105 responses •

19 people

MamaRain Please buy What to Expect when You're Expecting for her! It's important if she is healthy that she keeps active. Most women keep working until late in pregnancy that includes at the office and home! There are pilates exercise videos and classes as well as yoga...

9 Mar 07

gremal @gremal (1) • Australia 10 Oct 06

Is there a test that is done to dtermine if you are suffering from ms

10 responses •

1 person

MamaRain The only tests I had before diagnosis were brain MRI without gadolinium and evoked potentials as well as doctor's exam. It did however take 4 neuros before I got my diagnosis and it took a year. But many I have known have goen years and years and had to have...

9 Mar 07

Melizzy @Melizzy (1381) • United States 25 Dec 06

I've been diagnosed just about a year and a half. I'm looking to see if there are any others on MyLot who also have the disease? If so, what types of treatments are you doing? I take Copaxone injections daily.

15 responses •

2 people

MamaRain Hi Lizzy, I've had MS since about 1995. I am Aggressive atypical RRMS. I am doing Betaseron and Cytoxan aka cyclophosphamide which is a chemotherapy. I also take symptom meds such as baclofen (which I'm switching!!), oxybutynin, Ritalin (for fatigue), &...

9 Mar 07

snickers003 @snickers003 (2) • United States 8 Mar 07

I was diagnosed 4 years ago with m.s. and cancer. I survived the cancer with surgery and radiation, but I don't know about this m.s. thing. I don't know anyone with it, and would love to meet people who can share some of their...

multiple sclerosis

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1 person

MamaRain Heyah snickers! *hugs* I've had MS since about 1995... I don't why anyone would tell you not to listen to people who have had it for some time. People who have had it longer have a deeper history with it and the medications including symptom medications and...

9 Mar 07

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1 person

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