Ok parents of children with Autism... I need some suggestionss.

@wiccania (3360)
United States
March 20, 2009 5:22pm CST
My son is 6 years old and has Autism. He doesn't sleep. It's driving me insane. He's up until 1, sometimes 2 in the morning. Which, paired with his 730 waking time in the morning makes both of us cranky and makes him have a lot of bad days. Any suggestions for helping to get him to sleep? He will not let me turn the light in his bedroom off while he's awake, which I know is part of the problem. But he has a serious issue with the lights being turned off for some reason. The doctor suggested giving him a dose of benedryl or tylenol once a week to help ensure he gets at least one good nights sleep a week. But even that's hit or miss as far as getting him to conk out at a reasonable hour. I've tried wearing him out with activity (running around, etc), but that just winds him up. I'm at my wits end. When he doesn't sleep, I don't sleep. Which means that I'm up half the night, then I gotta wind down before I can fall asleep. Any suggestions? PLEASE!
1 person likes this
6 responses
@alharra (507)
• United States
25 Mar 09
I have three kids all with ADD/ADHD and my son is autistic as well. I gotta tell you without the night medicines all three of the kids are taking I would never get to sleep. One daughter is takihng Abilify, the other daughter is takig Clonidine and my son is taking Risperdal. Trazadone is also a good one.
1 person likes this
@Foxxee (3651)
• United States
21 Apr 09
Yeah but sometimes medication isn't the answer to everything... do you have any advice to parents that refuse to use medication?
@alharra (507)
• United States
21 Apr 09
I've noticed that you Foxxee don't like meds and I'm puzzled as to why. I do get that some parents don't want to use meds of any osrt but the fact is is that sometimes there just isn't any other way. I did try other non-medicine things and none of them worked- keeping the child up during the day so thewre are no naps, keeping them active etc. none of it worked. Because of the ADHD the kids just can't shut their minds off and go to asleep. So I use meds and have had great success. My son's teacher noticed an immediate improvement in his behavior after we started him on meds before bed- Duncan was better behaved, could work, and was not as cranky. My kids are all getting treatment from a leading ADHD expert and he doesan't like to use meds unless necessary and in my kids case it was necessary. Parenst need to consider what is best for their childrewn and if that means meds then that is what needs to be done.
@alharra (507)
• United States
22 Apr 09
My kids are the same as they were before meds- just more manageable. I don't want to count the times I have had meltdowns because of a bad day. As I said I have a really good doctor and anyone who medicates kids needs to make sure of the doctors for sure. My doctor has been to Emory and Duke so I know he has the education to do what is needed. The fact is though that if I had a prescription pad I could probably handle the meds for my daughters myself because I know so much about the meds. There are always going to be horror stories about bad reactions but there is a chance in everything we do- blood pressure meds are dangerous too as are so many other meds people take without a second though. As for kids who are turned into zombies because of their meds- those kids are over-medicated and the dose needs to be decreased. Getting the dose right can be tricky for smaller kids because of their weight as well as how the child metabolizes meds because every kids is different. As an example my son is taking 90 mg of Vyvanse every day and he is fine but the FDA says he shouldn't be taking that much. The FDA is in Washington and they look at how most kids would react to a med and they don't care that some kids just don't fit their thinking. But Duncan is fine and he's doing great. He's on grade level in school and will be able to go onto the 5th grade as long as he doesn't blow the CRCT. If you have any questions I will be happy to answer them to the best of myu knowledge. If you want to let me know where you are Icould ask my kids dr. for a referral for you in case you need it in the future- at least with a referral you will know you are getting an experienced dr.
@Foxxee (3651)
• United States
25 Mar 09
Does he take naps? If so, cut the naps out all the way & on top of that tire him out with activity work. Also stop all sugar items & use sugar free stuff. We also have a child who is Autistic & has a sleeping disorder. It has took us hard work to get him half back on track... he gets tired during the day, but we have kept him from naps so he will sleep more at night. What I did was, the one night my son refused to sleep & stay up until 3AM is, I let him stay up, when he finally fell asleep, as much as I hated to do it, we woke him back up at 7AM & kept him awake all day until 7:30-8:00PM & he crashed & slept normal because he was really tired. So this helped get him back on track, but we still at times have him wake up at 1AM but he usually falls right back to sleep... So I suggest on your day off, because you will be tired is try to stay up with him, let him stay up one last time & turn around & wake him back up at 7Am & if you have a partner, take turns keeping the little man awake... it sooo hard & I feel for you... Good luck!
1 person likes this
• United States
24 Apr 09
I can say I do and don't agree with that. Even though they have a disability, they still need to know that what you say is what's going to happen. My daughter is 9 now and we had the crazy late nights/early mornings. I would make her go to school and if she wouldn't go right down at night - she had to stay in her room. Now over the last few years I've been teaching more sensory activities that she can do to calm herself. She is at the point now that when she's getting upset or a meltdown is coming, she knows how to defuse it before she goes full scale. I didn't happen over night, but I think the main thing here is I told her it was okay to feel that way, but how she expressed it wasn't. She is still a girl, talks and has feelings just like anyother child out there, but she needed to know when I said bedtime, it was bedtime. If it's time to get up for school, then get up and hit the shower. She is so easy now. She's funny and happy because she knows know how to identify when she's getting upset and how to sooth herself so she can get a handle on the situation again. Just as with calming herself, now she looks at the clock - knows it's an hour for bedtime so she'll take out her puzzles or colors and do something quiet. See, she's learned how to bring herself down.
@Foxxee (3651)
• United States
24 Apr 09
That is easy for you to say... Most children with Autism can't read emotions & wouldn't be able to tell if you were being serious or not, so it's hard to do in several cases. It also be hard for the child to know when they are about to have a melt down & defuse it. (Maybe someone with High Functioning Autism or Aspergers) I wouldn't sit here & tell parents that yes you can do this & that when you don't know their childs situation. What works for one, doesn't work for all...
• United States
24 Mar 09
My autistic kiddos are 8 and 4. My daughter (8) has a very, very hard time falling asleep. We use a strict bedtime routine utilizing a lot of sensory integration techniques and she takes 3mg melatonin. My son only needs the routine. For the most part our routine is: Son- gets home from preschool at 11:30 and has lunch. He takes his asthma meds if needed and watches "My Life as a Teenage Robot." From 12-1 he plays with Play Doh. From 1-2 we go outside if weather is nice. If it's not nice out, he goes on his platform swing, indoor trampoline, and ball pit (that we use as a crash pad). From 2-3:45 he gets to pick any activity. If it's nice, we may stay at the park longer. At 3:45 my daughter home. Both: My daughter sits on the toilet until 4 and my son will play with his cars or trains. At 4, my daughter does her homework and I start dinner. If homework is done by 4:30, they play in the yard or indoor "park." At 5 they set the table and wash up for dinner. 5:45, my son gets in the bath and my daughter draws or colors. At 6, my daughter takes her meds (melatonin and singulair) and takes a shower. My son takes his night time asthma meds and plays on the computer. At 6:30 I read them a book while they color or play quietly with trains. At 7 they both get "brushed" (Wilbarger brushing) and by 7:15 both are in bed. My son is out by 7:30 and my daughter plays her DS until she falls asleep no later than 8. Without the melatonin, my daughter is still up by midnight, so the meds are a must. You have to get him doing the "right" activities. Running around is great, but he probably needs some physical help calming down. I'd suggest planning a Sensory Diet with his occupation therapist. The OT can help you get him "regulated" and ready for bed. I wouldn't use a non-consistent med. I think it would mess him up more. I'd see a pulmonologist for a sleep work-up, and discuss possible meds. Mine have had sleep studies so I know how long it takes them to fall asleep, how long they're in each sleep stage, how many times they wake up, etc. Both have mild sleep apnea and have had their tonsils and adenoids removed. Neither needs CPAP therapy yet. Melatonin for my daughter, nothing for my son.
1 person likes this
• United States
5 Aug 09
my child gets 3 mg of melatonin and works like a god send. She used to sleep only 2 hrs every night and that was it. Since she is seizure prone because of an abnormal eeg they say when she doesnt get sleep her seizure threshold is terrible and that's why we would see her stare off, behavior etc. The neuro didnt want to put my child on clonidine because she felt as though it would make my child a zombie and actually make her worse, I'm soo glad we didnt go that route.
@kprofgames (3091)
• United States
24 Apr 09
Children with austim are very different in their sensory issues. What will wear one child out, will only wind another up. I would suggest that getting ready for bed begin a good 3 hours before. Meaning, make sure the house is quiet. Turn off the tv and put on some soft classical music. Also do a sensory activity with him. Playdough or just kneading bread dough is a wonderful sensory. It works things out for them when they manipulate it in their hands. I understand about the lights being off. I had to put a night light and a light by the bed and actually unscrew the bulbs out of the ceiling so it reflected a nice soft light instead of this blinding one. My daughter finally told me this year she was scared. She was afraid of the dark so she wanted all the lights on when it got dark outside. Here again, the soft lights in her room and her work table is in her room. She did her coming down at night sensory activity there because it calms her and she also felt comfort in her room - thus she was less afraid because that was her area. I don't know if you have ever or would ever try medication, but Respital is wonderful here because it makes her tired after she takes it. I think the main thing here is making their bedroom a comfortable place so they aren't afraid in it. No at night time, she gets into bed and asks me to turn the lights off. She has the lamp on her night stand on and a night light and she's sleeping through the night. I made the big mistake years ago of just pop in a movie to watch and that had the reverse effect on her. Now after supper, we clean up and put our pj's on. She will watch alittle tv (in her room) then shut it off, play with blocks and do a puzzle then it's off to bed - no more hassels. I in all honesty think he needs to work with his hands. It just destresses them and relaxes them. Also when we've had a bad day at school. I might sit on her bed with her and just rub her legs and arms with lotion. Again it is a deep pressure excercise that helps them self calm. I might have talked in circles here, but sounds like he needs more sensory and deep pressure excercizes so he can calm himself. I hope this helps.
@Foxxee (3651)
• United States
24 Apr 09
You have some good ideas, but you need to understand that every Autistic is different. As in my case, my son has to have the lights OFF & noise to sleep. Also in my case, using playdough would actually set my son off & cause a melt down & playdough is one thing he hates to touch... BUt we have learned that he falls asleep faster if we lay a couch pillow over him. The couch pillow is as big as him & has a mediume weight to it. He likes the pressure. PLus we have a blanket made of nylon, & we rap him in it for pressure... he is able to stretch all kinds of directions in it...also helps a lot.
• United States
21 Mar 09
I'm with you, mine was up until 3:00am. My son will be 8 in May. When he started school we started meds. Our docctor gave him "Clonidine 0.1mg" (I cut them in half) at night. He is now asleep in 30 mins. He has been on it since he was 3 & we've had no problems. Good Luck!! We all need it.