Do you know or love or care for someone with Alzheimer's?
By debrakcarey
@debrakcarey (19887)
United States
June 29, 2009 1:55pm CST
I have spent the last twenty years working in nursing homes. I've helped friends and family take care of loved ones with Alzheimer's at home. I've read the 36 Hour Day, a book dedicated to the caregivers of those with this type of dementia. I've tried to keep up with the new research on Alzheimer's. I'd like to hear from you what you think about this terrible disease and maybe some tips from caregivers out there.
2 people like this
5 responses
@TrvlArrngr (4045)
• United States
29 Jun 09
I work in a retirement home on the weekends. I have only been there for 6 weeks and some of the residents who I met right away now do not know me. Sometimes they know me some days and not others.
One has only just started getting worse and worse. She calls me to ask if we have a restaurant, or when it opens and closes and what floor it is on. Do we have a library etc. over and over. it breaks my heart.
I never let on that they asked me before or it is not a new question. When someone says nice to meet you - I say the pleasure is all mine! But inside my heart is breaking
@debrakcarey (19887)
• United States
29 Jun 09
It is heartbreaking...and to tell the truth a little scarey. Do you often find yourself wondering if YOU will wind up with Alzheimer's?
I have learned to just love them...day by day...and I find that the need to be loved and appreciated is not lost. One of my biggest pet peeves is the young people out of high school who come in to work and just don't get it...that some day they may be in this situation.
Good for you that you treat them with honor and respect.
@TrvlArrngr (4045)
• United States
29 Jun 09
I do worry about getting it myself. I wonder if my kids will visit me or leave me there alone. It is very sad.
I treat them as I wish to be treated - you are right - with honor and respect. They lived a long and fruitful life and deserve no less than that.
@debrakcarey (19887)
• United States
29 Jun 09
That is the key to being a caregiver...humility. To recognize that it may be us some day and to treat those who are vulnerable with dignity and respect..as we would want to be treated if/when it is us. God bless...:)
@debrakcarey (19887)
• United States
23 Feb 11
That movie mad me cry. Very good movie if you want to understand the impact of Alzheimer's.
@anna728 (1499)
• United States
1 Aug 09
Luckily no one in life has gotten Alzheimer's. In my family Parkinson's seems to be what everybody gets. That is also certainly bad to have but thankfully it is not nearly as difficult to deal with as Alzheimer's. I wouldn't know what to do if someone close to me got it. I think the part that would hurt me most would be when they forgot who I was, and also watching them get scared and confused. That would probably be just heartbreaking.
@debrakcarey (19887)
• United States
2 Aug 09
It is heartbreaking. I had to learn how to accept that there was nothing I could do but show them love and support. It is very disheartening. But very rewarding too. Once in awhile to see that they will smile or that they begin to trust you....it is good. I've learned alot about myself in helping them.
@cubbiefan28 (36)
• United States
30 Jun 09
My grandmother suffered from Alzheimer's. While it truly broke my heart everytime I saw her, it was also an incredible learning experience. I watched my grandfather stay by her side for all of those years: the true definition of love. I watched my mother go to my grandparent's house at 3:00 in the morning at least once a month. My mother was always caring for my grandmother and she has taught me the duty that a daughter has to her family. In the final years, my grandmother forgot our names. My sisters and I became "little girl". I think that she knew to some degree that we were people who could be trusted because she never seemed frightened that we were in her home. While I wasn't my grandmother's primary caregiver, there are a few tips I can give from watching my devoted mother. Patience. That is the most important thing to have when taking care of family members and friends with Alzheimer's. Also, never forget the "good times". It is important to never forget that what a person does when they suffer from Alzheimer's is not really them. Even though they might not be able to show it, they love you. Always remember that.
Thank you for starting this discussion. This is something that is close to my heart.
@douglasdedwards (120)
• United States
30 Jun 09
my grandmothe has it and sometime it hurt my heart to see her like that
@debrakcarey (19887)
• United States
1 Jul 09
Think of it this way...she is still there and cannot communicate. She still needs you. God bless her...and you as you come to grips with this.