Why do doctors...

@Loverbear (4918)
United States
April 28, 2012 2:23pm CST
This discussion is dedicated to a very special lady who is a MyLot member and her husband who passed away a few days ago. Why do doctors feel that they have to put people through living he11 with treatments? These are to prolong our lives, supposedly, but they are horribly painful to go through. Chemo, dialysis, and more. I have known many people who have gone through dialysis and the pain is awful. Not to mention the difficulty of getting time on the machine. Of the people that I have known who have gone through the dialysis, 6 out of the 8 quit the dialysis because they just couldn't do it anymore. Of course they passed on, but they did it with dignity and they did it their way. If the people opt out of the treatment from the start they are considered as odd, chicken, selfish, and a long list of adjectives. I call these people very brave and extremely strong. There comes a time when a person has had enough of the pain, fatigue, non answers and the realization comes to them that all that the chemo and dialysis is doing is prolonging the pain, that the end result is going to be the same. The question the person asks them self is if the extra pain and suffering to extend their life is really worth it. Their life may be extended a few weeks, months or maybe a year. But what is the quality of life is going to be like? Are we all brave enough to ask ourselves that same question? As my Mom used to say, "Doctors are only practicing".
3 people like this
12 responses
@ElicBxn (63638)
• United States
28 Apr 12
That is where the term comes from... I'm sorry to hear about this member's loss, I know it has to be heart breaking. I've known only a few who have gone through dialysis. I knew that James Michener decided that he had enough of dialysis and opted out. There comes a point of time when there is no quality of life with that stuff. Some day it may be me, and I don't know what I will chose to do, but I have always said that I don't want to linger...
1 person likes this
@kareng (61152)
• United States
29 Apr 12
@Loverbear--That is the bottom line. What is your quality of life going to be like? I know my dad was miserable. You could see it in his eyes. He was bored out of his mind not being able to do anything but sit in front of a tv or turn pages in a magazine/newspaper and talk to whoever came by to visit. That was it. Every day, same routine except for when he was going for dr. appointments, dialysis, in hospital, etc.
2 people like this
@Loverbear (4918)
• United States
29 Apr 12
I know that when it comes to the point that I am in that kind of shape I will opt out too. It's a hard decision, but I also look at the fact that by continuing treatment only supports the doctors, labs, hospitals, and the dialysis companies. I just hope to have an understanding person at my side and a doctor that isn't caught up in his own self importance. Each of us has to take the time to understand the point where we need to use the scales of balance as to whether the treatment is worth all the pain and suffering against what our quality of future life is going to be.
3 people like this
@carmelanirel (20942)
• United States
29 Apr 12
Oh no, is this someone I know? Because I had trouble getting online for a couple days and didn't recall anyone's husband that sick other than the one whose husband was misdiagnosed and had to have his gall bladder removed... As for why doctors do this? It is what they are taught for one, and for two, it can prolong one's life, but a patient also has the choice to not continue, like you said. I am sorry this member lost her husband, that is very sad..:(
@kareng (61152)
• United States
28 Apr 12
This is a discussion that is very near and dear to me. My dad passed away in 2010 form renal failure (kidney disease). He was given two years to live about 15 years prior to 2010. Yet when my dad's health really declined and he could no longer drive and some days barely walk, my mom kept hauling him to the doctor. She wanted him to be fixed. My dad went through several surgeries that were not necessary. One was skin cancers removed from his face. This wasn't necessary. My dad got to the point to where he couldn't make decisions for himself. My mom had power of attorney. I actually think that she drove him to attorney's office and told him to sign the papers. My dad knew he was ill and would not survive many more years in 2009. That is when his health really started declining. His one wish was to not be hooked up to a feeding tube. That wish was granted, but my mom was all for it. I think if my mom really knew how little food my dad consumed when he was in the nursing home and hospital for rehab with limited visiting hours, she would have known he wasn't getting food. It was sad to watch my dad just waste away. He stayed on dialysis up until the end or almost. The doctor had just called me and told me that the dialysis was not working any longer and recommended he be taken off. My mom refused. My dad often refused dialysis once he got there. My mom had to go back up there several times to settle him down. In the end the nurses started calling me because my mom couldn't handle it all. I understand the pain and how one must feel. I think my dad would have saved himself a lot of this pain if he had his own wishes carried out. That last year was hard on everyone and the end result was the same. You can't change that. My dad beat cancer, heart disease and several heart attacks. He was a tough man.
@kareng (61152)
• United States
29 Apr 12
It's hard when you can see it in action and the person in control will not listen to reality or accept it. And then there was the legal action where we couldn't do anything about it. Good for you in making your wishes known. That is exactly my plan, although I know my husband wouldn't act or behave the way my mom did.
@enola1692 (3323)
• United States
28 Apr 12
Sad then is I know what you mean having a family where diabetes runs crazy my uncle was told he had only 2 weeks left an the doctor suggested removing his leg , my Aunt thinking there was going to be a miracle cure okd it an he had his leg removed an sadly he passed that week now how in the world is a doctor going to take someone's leg who is SUFFERING from diabetes after tellin the family he only had two weeks to live I never understood it an I have told my hubby when it comes down to it leave my legs alone an if need to be plug the plug cause I am tired of the pain sometimes an if it wasn't for all the grandkids smiling at me saying you can do it Nana come play I don't know what I would of done. I know what is going on with my legs an kidneys I do plan on fighting it but there is a breaking point an I an sorry for your friends lost but what in gods name gose through some doctors heads
@kareng (61152)
• United States
28 Apr 12
So sorry you are in such pain. Bless you.
@Loverbear (4918)
• United States
29 Apr 12
I realize that doctors are trained to save lives, but they need to stop and think about the fact that someone who has a limited life expectancy should be allowed to go with dignity and not the extra excruciating pain that a limb removal would cause! I can totally relate to what you are going through. Although I am not a diabetic, there are other physical problems that cause constant pain and suffering. If it weren't for my boyfriend Bill and my house full of critters (three dogs and four cats) I would have given up long ago. It is truly love that keeps us going. The hardest thing to accept is that a loved one is ready to pass on to the unknown. I had to come to terms with it (I did a lot of growing from the experience) because it was what my Mom wanted. If I could have one wish, I would wish for the people of the world to suffer less pain, if any at all. So many of the diseases should have been controlled and eliminated years ago. We are donating millions and billions of dollars to find cures for various diseases and we still aren't any closer to a cure for them, except extreme torture through chemo, dialysis, and injections on a daily basis. As for what goes through doctor's heads, I have run into a lot of them who feel that they are "Gods" because they went through years of school and internship. I usually manage to knock them off their pedestal and bring them back to earth. I hope you have a long time getting to enjoy your Grand children.
@enola1692 (3323)
• United States
29 Apr 12
I use to not have feeling in my legs an was wheelchair bound so now when there is alot of pain I know it sound sick but I think god cause I can feel it an I expect to be around for along time to enjoy my grandkids Lovebear I am also like you with the furbabies it seems once i heal one an find it a home someone else finds another for me to help working on a kitten that is 5 days old had him for 4 he was thrown in the trash an i think that is another way of I use to keep going an I also have 1 dog 5 cats 2 birds an now this tiny kitten an a bunny an i agree with you about what gose though doctors heads whatever happen to becomeing a doctor to help not for a huge pay check
@MandaLee (3764)
• United States
28 Apr 12
Doctors are human. They are not God. Doctors cannot cure everyone. All doctors can do is their best.
@kareng (61152)
• United States
28 Apr 12
That is true. I understand totally understand that. I think my mom was in a bad state of denial. He had beat so many other things. Sad.
@Loverbear (4918)
• United States
29 Apr 12
People don't always realize that doctors are only human and not Gods. They will listen to the "advice" from the doctor and will go with whatever the doctor says. What I can't understand is that when doctors know that the situation is hopeless they keep pushing extreme treatments or won't recognize the fact that the patient is tired of all the pain and suffering from extended treatments that can extend their lives a short period of time. It leaves them living a pain filled, non life. I often wonder if the doctors do the recommending simply to continue to have the funds come in from the patient's insurance. I know as humans all we can do is our best, but the doctors need to realize that sometimes that the treatment is worse than the disease and they should also offer other alternatives to the patient. I know from the pain that I live with every day that I would love a way to end the pain and have my life back. Right now I can't even weed the yard because of the pain. I am not near ready for my life to end, but I would love to find an alternative to all the poking, prodding, medications, testing and so forth. It would be great if when the situation is so dire that there was a counselor on hand that could handle the denial, grief, and decision making process with the family and be the level head that will take into consideration the patient's wishes.
• United States
28 Apr 12
Most doctors want to help, but occasionally one gets a grandiose picture of himself and refuses to see the truth. When Bru decided to stop all treatments, especially a vest designed to shock his heart back to normal rhythm, the doctor actually questioned whether I had told him the truth about the vest. I had, including the fact that since he laid on his back all the time, he would get bedsores where they could not be healed. The vest included two metal plates he would be resting on all day. The doctor explained everything again and was surprised to discover Bru still wanted nothing more to do with tests, vests, dialysis, pacemakers, or anything else that would not help him get up and walk again or learn to talk.
@kareng (61152)
• United States
29 Apr 12
These are the kind of doctors who should not be practicing medicine at all. A doctor should have compassion first and foremost.
1 person likes this
@Loverbear (4918)
• United States
29 Apr 12
It is the doctors with the grandiose ideas of what he can do that really give me a pain where I sit. They cannot accept that fact that the patient doesn't want to continue in a pain filled life that has no sign of improvement. They come up with really outrageous ideas for what to do for the patient rather than accepting the patient's wishes. I remember many years ago, when I started my Work Compensation suit that I went to one of the doctors with a exaggerated opinion of himself. I have bad C 4,5,and 6 disks in my neck. I was advised by another doctor that if I had the surgery to correct the problem I would have a 99% chance of becoming a quadra or paraplegic. I had heard a LOT about that surgery anyhow and really didn't want it. One day we were early to my appointment and were sitting in the parking lot. I watched the doctor drive up in a brand new Mercedes. I told Mom that this would be my last appointment with the doctor. She wanted to know how I knew, and I told her about the new car and that he would be pushing for me to have the surgery. I was right. He immediately met me with "Either you have the surgery or you leave". I told him "Good bye" and left. It was a good thing that I didn't have the surgery because I was rear ended when I was up at Stanford and although it was a light tap on the rear of my car, I still had a mild case of whiplash. My neurologist stated that if I had had the surgery I would have been in a wheel chair. Bru was a very wise man and knew his mind and strengths. The doctors are used to patients that want to be saved at any cost. They will do anything to prolong their lives even if it means suffering horribly and that it will bankrupt their families. The sad part of it all is that usually the only one to benefit from the patient's decision is the doctor. Just like the surgeon that I wrote about above, my surgery would have paid for his new car, but he omitted the crucial detail about the probabilities of paralysis and being wheel chair bound. I can't imagine that the doctor had the guts to recommend the vest. Especially with two metal plates resting against his back. At that point the doctor's main concern should have been making Bru more comfortable and easing his remaining time rather than trying to extend the misery. I would love to hunt that doctor down and give him a good swift kick in the educational spot.
3 people like this
@liquorice (3887)
29 Apr 12
I like what your mother said. I agree. Dialysis sounds awful, and it is up to each person what they want to put their body through. It has to be, it's their body. One thing I wanted to add was that I read an article in the newspaper yesterday about how scientists have discovered that giving chemo doesn't necessarily prolong life, and so might change cancer treatment in the future. Particularly for slow growing tumours. So refusing chemo can be rational, and may be backed by medical evidence.
@1hopefulman (45120)
• Canada
29 Apr 12
My condolences to our Mylot friend! I pray that God will give her the strength she needs. I haven't been to a doctor in about 5 years and I hope I never have to see one again. I'm not against doctors, I just hope I never have to need one.
@yanzalong (18987)
• Indonesia
29 Apr 12
This is the most frightening moment. Let's hope this will never happen to us. Thank for sharing Loverbear.
@yanzalong (18987)
• Indonesia
29 Apr 12
It's very threatening to me. And I am still wondering what has caused the disease to happen. I don't think dialysis will do the trick well. Are you sure the harmful substance can be eliminated?
@dazzledlady (1618)
• Philippines
29 Apr 12
Doctors give you options, they don't impose on you to make that decision. If you do not give your consent then they cant do anything about it. It is the choice of the patient or the people around them to undergo such treatments despite the side effects simply because they want to live longer. Its the price they know they will suffer for a chance to live. Doctor's cannot cure all but they can treat on the best of their capabilities to give you the options to decide on how to deal with the health condition.
@geen1234 (111)
• Philippines
29 Apr 12
when you run to the hospital and your patient is in bad condition or dying, doctors will always advice to admit the patient even if they know that patient is no chances at all, they will explained to you everything how yours patient condition but still advice you to admit your patient. and if you refused to admit since you knew that there will be no chances at all, they will let you sign the records of the patient. it is also hard for them to see and witness if what will happen to their patient, they also feel that they are failure, even if they done their very best.