Be Heard Campaign
By bestie
@bestie (3272)
Philippines
May 19, 2020 11:48pm CST
Allow me to share this one. I had been reluctant to be vocal about my condition but my co- warriors inspired me to do so.
May is a Lupus Awareness Month. Guess everyone heard about this illness but many are not aware and not so familiar with what really this illness is all about.
Lupus is a long-term autoimmune disease in which the body's immune system becomes hyperactive and attacks normal, healthy tissue. Symptoms include inflammation, swelling, and damage to the joints, skin, kidneys, blood, heart, and lungs. I call this a one shot battle coz this causes damage holistically.
This month marks my 2 years of being diagnosed with such illness. I had gone through hard times dealing with this and the journey still continues.
Most of us feel guilty of not feeling alright. Guilty of the things that we can no longer do because of how Lupus affected us. Guilty that we have to turn our back and live something that is unusual or not something we're used to. But listen IT'S OKAY NOT TO BE OKAY.
There'll be things that we need to let it slipped. Specially at times that we can't do something. We don't need to feel guilty if what you did today is just SURVIVE.
Whatever it is, just keep going and keep fighting. Soar like a butterfly!
Thank you for taking time to read.
Have a good day
31 people like this
34 responses
@cmoneyspinner (9219)
• Austin, Texas
20 May 20
A lot of people suffer from lupus. But my first time hearing about it was in Maryland decades ago. I had made a friend there and just as we were getting to know each other, she said he had to move back to Florida. The doctor told her the weather in Maryland was aggravating her medical condition. She told me she had lupus. She made me aware of this sickness. I understand, I empathize, and I sympathize. She had to change jobs and everything. It was major. You're doing what my friend did. You just keep fighting!
5 people like this
@Lakshman15 (2662)
• India
20 May 20
I agree with your words..we must fight hear no other way..don't loose your soal.
3 people like this
@rsa101 (38126)
• Philippines
20 May 20
You have my respect and I was inspired by your bravery to face such an unusual disease that few are afflicted. I hope and pray that you live long enough to help people with the same condition which are on the path of giving up. I know this is not an easy way to enjoy life but I know that maybe we have to think that there is a mission behind your condition and maybe your being active in your group might be one of your life’s mission to serve people in the same circumstance. God bless you!
2 people like this
@bestie (3272)
• Philippines
20 May 20
@rsa101 Thank you you know every condition we encounter, denial comes first and I was on the point of asking "Why me?" always an initial reaction. And "am I gonna die?" Well, almost but really thank's God and maybe you're right I still have a purpose that I had given a 2nd chance
you know every condition we encounter, denial comes first and I was on the point of asking "Why me?" always an initial reaction. And "am I gonna die?" Well, almost but really thank's God and maybe you're right I still have a purpose that I had given a 2nd chance2 people like this
@JudyEv (338942)
• Rockingham, Australia
20 May 20
I am very sorry to hear you have lupus. I don't really know much about it but from your explanation, it seems it is a huge, daily battle. I salute your courage, firstly in dealing with it and secondly in speaking about it. Thanks to @hereandthere for the suggestion.
2 people like this
@bestie (3272)
• Philippines
21 May 20
Thank you. Acceptance is really hard at first and to speak about it is somewhat a struggle coz you don't know how people will react. Sometimes, you will think you should be proud of coz you're still able despite your condition and sometimes you'll just feel depressed and afraid to speak for yourself.
. Acceptance is really hard at first and to speak about it is somewhat a struggle coz you don't know how people will react. Sometimes, you will think you should be proud of coz you're still able despite your condition and sometimes you'll just feel depressed and afraid to speak for yourself.2 people like this
@hereandthere (45645)
• Philippines
21 May 20
i became aware of many medical and mental conditions shared by other mylotters from around the world, if not in their own discussions, through the responses and comments
3 people like this
@Deepizzaguy (102206)
• Lake Charles, Louisiana
20 May 20
Thank you for sharing this blog about lupus. Keep up the battle and be true to yourself.
3 people like this
@bestie (3272)
• Philippines
20 May 20
No, it's not curable. Still under research for the cure, hopefully there will be.It's been a disease for ages that doesn't have a cure yet. Only medications are needed to suppress our immune system and to prevent us from flares. (experiencing unwanted signs and symptoms) and we're lucky enough if we're on remission, it means lupus is sleeping with the help of our meds.
We do have some privileges, the best our gov't can offer, we have discounts on medications, on some goods and food establishments provided we had the PWD id in which we can avail if we have medical certificate from a doctor, a proof that we have this illness. And SSS provide disability pension for us having this kind of illness as a disability
We do have some privileges, the best our gov't can offer, we have discounts on medications, on some goods and food establishments provided we had the PWD id in which we can avail if we have medical certificate from a doctor, a proof that we have this illness. And SSS provide disability pension for us having this kind of illness as a disability3 people like this
@allen0187 (58582)
• Philippines
20 May 20
Thanks for sharing your story.
Keep fighting.
2 people like this
@Aquitaine24 (11813)
• San Jose, California
21 May 20
Thank you for sharing and I hope you have some good days.
2 people like this
@LeaPea2417 (37348)
• Toccoa, Georgia
20 May 20
I have heard of it. I have a relative who has it.
2 people like this
@petatonicsca (7070)
• Japan
21 May 20
Thanks for sharing. Keep fighting!
I had a high school friend with lupus.
2 people like this
@Writingghost (5196)
• United States
20 May 20
Do you have SLE lupus - I ask because that is the kind my brother has?
2 people like this
@Lavanya15 (12888)
• Chennai, India
20 May 20
Need strong heart to fight... Hope you get success
2 people like this
@GardenGerty (160522)
• United States
20 May 20
It is amazing, not in a good way, how many people have this or other auto immune diseases. Be good to yourself. We often do not know the battles others are fighting.
2 people like this
@1creekgirl (41339)
• United States
20 May 20
Thank you for your post. I pray you'll have a really good day.
2 people like this
@andriaperry (116936)
• Anniston, Alabama
20 May 20
You are right.... just soar!
My sister has Lupus.
2 people like this
@arunima25 (87746)
• Bangalore, India
20 May 20
It's touching and so inspirational. Good that you have shared it here and it definitely motivates a lot of us here. You are so right to say that IT IS OKAY NOT BE OKAY and i think it is apt for every life on earth
2 people like this
@freelancermariagrace (27576)
• Philippines
20 May 20
Thank you for sharing your story with all of us. Keep fighting my friend.
2 people like this
@Marshmallow_03 (45)
•
20 May 20
I actually first came to know this condition when Selena got diagnosed with it and got surgery. I can't imagine the difficulties you faced and how hard it was. So thank you for sharing this and inspiring others! You are brave.
2 people like this
