My cousin Lost His Battle to HLH But what is HLH?
@Michellekidwell (29370)
Sonora, California
December 21, 2021 3:19am CST
I like the way my cousin described HLH better but in order to understand the condition I thought I'd share the more technical definition.
Hemophagocytic lymphohistiocytosis (HLH) is an inherited disease of the immune system. It's known as a "primary immunodeficiency." The body's immune system fights off infections and anything else it sees as foreign invaders to the body. In HLH, the body makes too many immune cells.
My cousin was diagnosed in July and Passed away yesterday morning at 2:55 am. He's greatly missed!
9 people like this
10 responses
@DianneN (247186)
• United States
21 Dec 21
@Michellekidwell Oh, my! I’m so extra sorry. I’m not here much lately and missed that. Who else passed?
1 person likes this
@Michellekidwell (29370)
• Sonora, California
21 Dec 21
@DianneN My Aunt Chris, a day and a half later her second oldest Sean Paschini...
1 person likes this
@Michellekidwell (29370)
• Sonora, California
21 Dec 21
Thank you, two family members in less than two days, It's been a hard few days...
1 person likes this
@TheHorse (217891)
• Walnut Creek, California
24 Dec 21
@Michellekidwell But I think there are other "overly aggressive immune system" disorders out there.
1 person likes this
@Michellekidwell (29370)
• Sonora, California
24 Dec 21
@TheHorse There are many, this one is rarer than.most, there are 12 doctors in the U.S that specialize in it, one at Stanford.
@Hannihar (130218)
• Israel
21 Dec 21
@Michellekidwell
I am so so sorry for your loss. If they caught it before July could they have saved him?
1 person likes this
@Michellekidwell (29370)
• Sonora, California
21 Dec 21
I really don't know he wasn't sick for long and it's rare there are only like 12 doctors in the country who specialize in HLH
1 person likes this
@LindaOHio (176652)
• United States
22 Dec 21
Thank you for the explanation. Again, I'm so, so sorry.
1 person likes this
@Michellekidwell (29370)
• Sonora, California
22 Dec 21
You're welcome and thank you...
1 person likes this
@rsa101 (38126)
• Philippines
22 Dec 21
So sorry to hear that. It is the first time I heard of this medical condition but the symptoms seem familiar as there are indeed many different immuno-deficiency conditions out there. It is just sad how fast the problem has progressed since its diagnosis. My condolences to you and his family and loved ones.
1 person likes this
@1creekgirl (41330)
• United States
21 Dec 21
This will be a sad Christmas for you and his family.
1 person likes this
@youfiq (2565)
• United States
21 Dec 21
I'm sorry about this and honestly sad to know that he's gone.
When I read the title at the beginning, I thought HLH was some kind of online game or something, it turned out to be your cousin's fight with his own life. very sad.
he must have fought hard to fight his illness, but now he is at peace with God.
@Michellekidwell (29370)
• Sonora, California
21 Dec 21
I don't have this particular disease thankfully, but he did...
