12/14/24 - Update On My Husband
By LindaOH
@LindaOHio (181321)
United States
December 14, 2024 10:23am CST
Well, yesterday I put on my big girl panties, cried a little and made the gut wrenching decision to have my husband transferred to long-term care. He will have no physical therapy and will just lie there until the day he dies. I am devastated.
Forgot to mention that last Sunday when we visited, the facility was under a COVID outbreak.
The facility called me yesterday to tell me that my husband has lost his phone.
Thank you for your support, prayers and thoughts.
Photo Credit: Pixabay
30 people like this
29 responses
@FourWalls (68884)
• United States
14 Dec
I’m so sorry, for so many reasons. I know you didn’t want to, but in the long run, it is best for both of you. Don’t “beat yourself up” for your decision.
Don’t give up on the VA, though. And do take some time for yourself. And let me know if you need me.
8 people like this
@LindaOHio (181321)
• United States
14 Dec
Thank you. I wanted to spend our "golden years" together.
2 people like this
@GardenGerty (160879)
• United States
14 Dec
Good of them to call about the phone. They should have activities, etc. and help him get to them. It still hurts. I put my first husband in long term care at 42 due to a progressive illness, and since then have had occasion to learn about them, but they are not all the same. It is still really hard as it is so challenging for you to get to go see him. I hope you do not get covid.
8 people like this
@LindaOHio (181321)
• United States
14 Dec
Thank you. I must be strong and handle this.
3 people like this
@LindaOHio (181321)
• United States
14 Dec
Thank you so much. I had hopes of us spending our last days together.
1 person likes this
@snowy22315 (181942)
• United States
14 Dec
Aww, so sorry I wish it was different. I knew you had high hopes at some points...
6 people like this
@LindaOHio (181321)
• United States
14 Dec
I really thought we would spend our last days together.
1 person likes this
@LindaOHio (181321)
• United States
14 Dec
Thank you. It's not the future I had hoped we would have together.
1 person likes this
@1creekgirl (41686)
• United States
14 Dec
Linda, I can't tell you how so sorry I am. It brings me to tears for you both.
7 people like this
@1creekgirl (41686)
• United States
14 Dec
@LindaOHio It's sure not what all of us hoped and prayed for. But God is still with you and loves both of you.
1 person likes this
@LindaOHio (181321)
• United States
15 Dec
@1creekgirl I pray that he will be able to endure long days in bed.
1 person likes this
@LindaOHio (181321)
• United States
14 Dec
Thank you. It's not the ending that I had hoped for the two of us.
1 person likes this
@kaylachan (71519)
• Daytona Beach, Florida
14 Dec
Wow. Well he won't lie in bed all day. That's not the same as putting him on hospis, but I know this isn't easy. Has he been evulated to determine if he's capable of making the decision for himself? Because if he is determined capable he can overturn the decision. So, just hang in there.
As for him losing his phone, I hope no one stole it.
4 people like this
@LindaOHio (181321)
• United States
14 Dec
I just hope he won't blame me for the rest of his life.
1 person likes this
@kaylachan (71519)
• Daytona Beach, Florida
15 Dec
@LindaOHio If you stop fighting and helping him to get home, then maybe he might. I know you think you're doing the right thing, but long term care doesn't always mean forever. With him being in long term care, you can still work twords him coming home. He's come as far as he can with in-patient therapies. But, now, you can arrange doctor's appoitments to have him evulated and ensure his wishes are being met. Now you can get the scripts and wheels in motion for home health aides and things like that.
The point is, you can't give up on him and respecting his wishes. You have to ask yourself, why you did it? Was it more for you? Or, was it for him? If he said he wanted to live out the rest of his days in a home, done deal. It's over. But, if he wants to come home, you have one less weight on your mind, you don't have to rush a discharge date. You can bring him home, once you get things in place to do so. But, you'll only be hurting the both of you if you give up now.
When I told George similar this morning after reading this post, he said 'I wouldn't stay'. He would've given anything if it meant being home. And he deserved that.
Both of my parents passed in their own home. And, I am sure that's what your husband wants, too.
Linda, please, don't give up. You were willing to fight a loosing battle with the insurance company to get some of the money back you spent on the rehab centers. Please keep fighting for your husband. See about pallitive in-home care. See what your options are. Be present when he goes to the doctor, don't wait for a phone call. You can do this. He needs you.
2 people like this
@Juliaacv (51458)
• Canada
15 Dec
@LindaOHio I do not think that you made the decision so much as you are rolling with the punches that life has dealt to him, and indirectly to yourself. You are being realistic, and you can still enjoy time together, it just will not be as you have always thought it would be.
2 people like this
@LindaOHio (181321)
• United States
14 Dec
It's against everything I thought we would share together in our last days.
1 person likes this
@LindaOHio (181321)
• United States
16 Dec
@Juliaacv It's a big blow at this stage in our lives. I will just have to adjust to it.
1 person likes this
@LadyDuck (471969)
• Switzerland
15 Dec
@LindaOHio - We always hope to spend all our days with the one we love, until the end.
2 people like this
@LindaOHio (181321)
• United States
14 Dec
Yes. It's not what I had hoped for us.
1 person likes this
@LindaOHio (181321)
• United States
14 Dec
Thank you. I had hoped that we would spend our last days together.
@sallypup (61561)
• Centralia, Washington
14 Dec
Dearest Linda, oh I hurt for you. Life is being too cruel to you and your sweet hubby I hope the place turns out to be much better than it appears to be at this point. Perhaps there will be some employees who really care and who will do what's right and good for your hubby. I am deeply sorry.
4 people like this
@LindaOHio (181321)
• United States
14 Dec
Thank you. It's not the future I had hoped for us.
1 person likes this
@LindaOHio (181321)
• United States
14 Dec
It hurts me to the core. I just hope he doesn't blame me.
@Beestring (14672)
• Hong Kong
14 Dec
I am so sorry. Will continue to pray for both of you.
4 people like this
@kareng (61152)
• United States
15 Dec
Awe, I know you are hurt and upset that you had to make this decision, but I think that it is the best solution at this time. I would continue to pursue the VA and see how they can help you.
Hopefully, he hasn't contacted Covid or you and his cousin when ya'll visited last!
Continued prayers for you and your husband!
1 person likes this
@LindaOHio (181321)
• United States
16 Dec
Thank you. Waiting to hear back from the VA.
1 person likes this
@wolfgirl569 (107859)
• Marion, Ohio
14 Dec
So sorry . I know it's not what you wanted. But it's for the best. I hope you can find a good place that is close so you can visit him easier. Research how much they do with the residents. A good home the aides will get them out of bed, take them for walks and have activities for him to do.
1 person likes this
@wolfgirl569 (107859)
• Marion, Ohio
16 Dec
@LindaOHio You need to research. The one I had dad in would even take him for a walk in the middle of the night when he wanted to.
1 person likes this
@LindaOHio (181321)
• United States
16 Dec
They don't do that at the present place or the last one.
1 person likes this
@LindaOHio (181321)
• United States
17 Dec
@wolfgirl569 Wow! This place would never do that..or the old one for that matter.
1 person likes this
@TheHorse (220068)
• Walnut Creek, California
16 Dec
@LindaOHio Bummer. Will it arrive quickly?
1 person likes this
@LindaOHio (181321)
• United States
16 Dec
Thanks. I don't know. I had to order a new one for him.
1 person likes this
@lovebuglena (44712)
• Staten Island, New York
16 Dec
How could he have lost his phone? Isn’t he always in his room?
It is heartbreaking that he has to be in a long-term facility. There’s no way to have him be at home and have someone taking care of him?
1 person likes this
@lovebuglena (44712)
• Staten Island, New York
16 Dec
@LindaOHio wow! That is crazy. Can’t afford to do that.
1 person likes this
@LindaOHio (181321)
• United States
16 Dec
He goes to PT. It could have been lost in his bed; and they took the sheets to the laundry. It's 2x as expensive to have someone here 24/7 to take care of him.
@MarieCoyle (38562)
•
14 Dec
I am so sorry that you had to do this, I don’t feel you really had a choice. I know that was a hard decision for you to have to make.
2 people like this
@LindaOHio (181321)
• United States
14 Dec
Thank you. I had hoped we would spend our last days together.
1 person likes this