endometriosis/reproductive problems

United States
December 27, 2006 4:38pm CST
i was diagnosed in august with endo..it sucks. believe me. all throughout ninth grade i had horrible pains in my ovary area that i thought was just some sort of growing pain, especially when i would run or sit for too long. i went to the doctor and all they said was that i had a cyst on my right ovary but it wasn't big enough to cause any pain or problems. basically they told me i wasn't in pain and sent me home. years after that, still hurting, i went to another doctor and she told me i might have enrometriosis, i had no idea what that was but i started researching and freaked myself out. researching reproductive problems on the internet is very sketchy, you can easily scare yourself. she said "dont worry, most women dont need full hysterectomys now days" MOST.....DONT NEED! all i could think of was my future,...children, my one solid goal in life..so, i went to a gyno and he got me in for surgery right away, a laproscopic surgery where they went in through my belly button with a light and looked for lesions/adhesions, he found small simple ones that would cause a lot of pain but not necssarily reproductive problems... i sill remain terrified that i wont be able to have children but, hopefully that isnt the case, and hopefully the pain settles down soon. anyone out there suffering this?
9 people like this
27 responses
• United States
27 Dec 06
I to was diagnosed with endometriosis, at the age of 15. I have had several surgeries. My last was the laproscopic surgery through my belly button. I had this surgery 13 years ago. It took a little while but since then I have had two children and have not had to have another surgery. If you ask me you had the right surgery, and after awhile should have no problems having a baby or two. The pain does go away.
3 people like this
• United States
28 Dec 06
I have known people who suffer from this and they still were able to have kids so i would not worry about not being able to have kids because most likely you still will be able to.let yourself heal and stop worrying.stressing about it will not do you any good do not worry about it until you have to.
• United States
28 Dec 06
i know i know, the stress actually makes the pain worse, it's so difficult, thanks for the positivity,.
@Aali311 (6112)
• United States
28 Dec 06
I've been having abdominal pains alot lately, I have to go see a doctor, I hope I don't have it, anyways my cousin has endometriosis, she's always having bad cramps and they told her that it would be hard for her to get pregnant but she is right now. I hope things get better for you.
1 person likes this
• United States
28 Dec 06
good luck for your cousin, endometriosis can cause a lot of problems during pregnancy, too. so make sure she stays on top of her prenatal meds and a lot of vitamins. good luck figuring out your cramp situation, it's hard to handle.
• New Zealand
27 Dec 06
I feel for you. I was diagnosed with endometriosis at the age of 18 and was told that the chances of conceiving were less than normal. The endometriosis had infiltrated one of my ovaries and I had deposits on my bowel, bladder and uterus. I fell pregnant with my first son at age 20 no worries and had trouble free pregnancy but the endometriosis was geting worse and I suffered severe pain when menstruation. It took me 2 years to concieve with my second son and was contemplating using hormone medications to increase my chances of conception at the time. I had a difficult second pregnancy as my uterus was badly covered with endometrial deposits which made my uterus weak. I almost lost my son at 22 weeks gestation and spend the rest of the time flat on my back. I carried him to 32 weeks. The doctors told me it would be to dangerous for me to have more children as by now my uterus was in bad shape and was stuck to my bowel. I had a hysterectomy 3 years later and it was the best thing I have done. Good luck with your situation and don't give up hope of not having children.
2 people like this
• United States
28 Dec 06
thank you so much, it's so helpful to hear that you did conceive and even though it was a struggle you overcame it.. that's the kind of thing i like to hear.. hearing "it's going to be all right" gets old.. because, it might not be, i might have a struggle..i just need to know that it's going to end out ok after the struggle...or not, i dont know. just thank you very much
@mbs730 (2147)
• Canada
28 Dec 06
I'm really sorry to hear this. If this gives you any hope, I know of lots of women who have endometriosis and DID successfully have kids of their own. Some did struggle, I must admit but they did get there and you will too.
• United States
28 Dec 06
im ready for a struggle! it's just kind of hard to grasp the whole thing... thank you though
@vanities (11395)
• Davao, Philippines
28 Dec 06
im sad about hearing your story but dont worry all things will be alright...just trust your dr. and to God...luckily i havent have that kind of illness thanks to God..
• United States
28 Dec 06
well, i guess god is only on your side.
@Jusred (1578)
• United States
28 Dec 06
Yes..I also had endometriosis, as did my mother, and when my husband and i were trying to conceive, it of course prevented that..I also have polycystic ovarian syndrome, and surprisingly many woman do without knowing it. I had the Laporoscopy also, and the lesion removed was small. If your Doctor told you your case was not severe, and the ones found were removed, then reproduction is very highly possible for you...In many other cases, endometriosis is very severe -covering all the woman's reproductive organs and many other places inside the pelvic cavity- and here is where Hysterectomies are advisible, given the severe bleeding and pain that cannot be contolled with medication, such as hormone therapy. Since your case was not severe, I would not 'freak yourself out' by reading everything about endometriosis you come across, as you will most likely read about the more severe cases. Hopefully, you will be able to conceive now, and your periods are less heavy and painful. Know that endometriosis does grow back in most cases, so if you want to have children, now that you have had it removed, now may be the time to try and conceive -before any grows back.. Talk with your OB/GYN with any concerns you have regarding this, and your ability to conceive (I am assuming they also made sure your fallopian tubes were patent during the Laporoscopy procedure) and discuss the problems regarding the ovarian cyst(s) you have and their impact on your ability to conceive. After my removal of the endometriosis, I became preganant 2 months later, and again 1 year after my first son was born. There are also medications to help with conception for a woman, such as Clomid, for example..And also have your husband checked (sperm count and health of them) if infertility persists.. Once you have your children, or cannot and decide upon alternatives (such as adoption), and the endometriosis grows back, gives you more discomfort than you are able to tolerate or have controlled through medication, a Hysterectomy may be a good choice (and a relief!) Also, if the ovary plagued with a/the cyst(s) is unable to be corrected or the discomfort worsens, etc, removal of one ovary still leaves the second one, and that decreases fertility by 50%, as usually the ovaries alternate in producing the ova (egg) every other month.. Again, all/any options and procedures, medications, should be discussed with your OB/GYN..and if you are unhappy with he/she, get a 2nd, 3rd, etc opinion. Sometimes, seeing a fertility specialist produces a better outcome. Having children, your % of ability to do so, trying different options and living with discomfort that cannot be controlled all need to be taken into consideration.. As it is good to be knowledged in things that are specific to you, don't allow yourself to be scared by all that you read, as much of what you will discover encompasses all, including the worst case scenarios~ Good Luck to You!
@Jusred (1578)
• United States
28 Dec 06
~If you have any more questions regarding this, feel free to message me, as i have been there also, and i am a nurse.. :)
• United States
28 Dec 06
i agree with most of what you saw except for the severity part. less severe cases cause more pain than the more severe type do... it's proven, they didn't take anything out with my surgery it was only exploratory. i do need to go to another doctor though because i'd like another opinion. thank you for all your very helpful words though.
1 person likes this
@Jusred (1578)
• United States
28 Dec 06
It's odd they didn't remove some or most of the endometriosis during the exploratory procedure~? I have faith that you will be successful in having children in the future, and hopefully the symptoms can be controlled as well..I would definately see another Doctor, and through having it monitered and kept under as much control as possible, through hormone therapy even, your prognosis appears to be on the plus side- Good Luck and I hope you find as much resolve for this as possible~
@padhukr (2267)
• India
28 Dec 06
i had this.
• United States
28 Dec 06
wow, what an extremely helpful comment. please be more descrpitive..i'm not doing this for the points.
@Stephanie5 (2946)
• United States
28 Dec 06
Ohhhhhhh I'm sorry. I have it too, and yes, it's very painful. However, (here's the good news)..I was diagnosed at age 21, and went on to have 3 more babies! I have 5 all together! So, keep your head up and don't worry so much. If the doc said you shouldn't have any problems then I wouldn't worry. If you just had the surgery, now is a great time to try to get pregnant if you are ready, (i don't know your personal situtation, boyfriend, husband, etc. ) But anyways, endometriosis GROWS, and if you just had it removed, now's the time to get pregnant! Good luck Sweetie, I'll pray for you!
• United States
28 Dec 06
Oh, I'm sorry...Yeah, don't have a baby just yet then :-) Well, if there wasn't anything for him to remove, then that is GREAT. They ended up making 5 different incisions(sp) on me that's how bad I had it! And mine grows REALLY fast, I've lost count of how many surgeries I've had. I have my tubes tied now, but I did have 3 more children after they told me that I wouldn't be able to unless I hurried. And they told me that I probably would only be able to have 1. SO, I'm very blessed. I wish you the best of luck!
• United States
29 Dec 06
thank you so much!...very proud of you with your struggle..im so happy with the response i've gotten from this
• United States
28 Dec 06
im only seventeen, i think im much too young. when they did the surgery it was only exploratory and he didn't remove anything.. there was nothing to remove because it was such a small amount. i will get pregnant as soon as i feel ready though..i really want children
1 person likes this
@lafavorito (2959)
• Philippines
29 Dec 06
Oh girl I'm so sorry that you're scared. Have you asked your doctor more about endo? It's easy to scare yourself just by reading stuff on the internet, just take care of yourself and follow the doctors orders. Good luck!
• United States
29 Dec 06
thank you, yeah i've asked a lot of people about it.... i'm just continuing to learn more because even tnhoughtthe internet is scary it still causes me to learn more about what is wrong with me....
@car0811 (184)
• Philippines
28 Dec 06
We're on the same boat. When I was younger, I would experience menstrual cramps not so ordinary. It was so painful I have to go home from work.It's like I also have LBM whenever I have my period.I went to the doctor after not being able to conceive for 2 years of being married,like you I was also diagnosed to have endometriosis the first time my ultrasound came out. The 2nd time, it was endometrioma. Whatever the name was, they are just the same. Like you, I got terrified and cried a lot after finding out about my reproductive condition. I was thinking if I could still bear children but my OB reassured me I stand a good chance. I tried taking the fertility pill Clomid for months to no avail and then had another ultrasound to check the size of my endometrioma, it did decrease though. I wasn't sure if it's because of Clomid. Now, I am not experiencing any pain anymore but it's been more than 7 years and yet, I still don't have a child.
• United States
29 Dec 06
an endometrioma is a bundle of endometrial tissue...it's kind of like a cyst but not just an open adhesion. damn... im so sorry you still dont have a child but..keep your hopes up..i guess that's all you can do. we'll fight this together, all of us, because there sure is a damn huge ammount of us. thank you
@Melizzy (1381)
• United States
28 Dec 06
I had it. They lasered it off and then i took the LupronDepot shot for 6 months. It throws you into menopause and "starves" out the endo. You can also stay on birth control pills every week for six months. Or you can get to Depo shots lasting 3 months each. Hang in there.
• United States
28 Dec 06
you have no idea how bad that is for your body though, im not really into starving any part of my body if i dont have to..it's just terrible that the only thing doctors resort to is hormone therapy. thank you.
• United States
28 Dec 06
I admittedly don't know alot about endometriosis, but I will keep you in my thoughts and hope that things will improve for you...as they say, there is such a thing as miracles...love and light dearheart
• United States
29 Dec 06
thank you. where did you get the phrase dearheart from? i use that a lot and never heard anyone else say it. i started saying it because of a song..
• United States
28 Dec 06
I to had endometriosis. I was having excruciating pain back when I was 24. I was at work and literally fell over in pain. I was rushed to the hospital for a laparoscopy. They found that I had endometriosis and that it was pretty severe. They went ahead and attempted to remove it. When I came to my doctor told me what I had and that he got it. When I went for my follow up appoint, my doctor told me he wasn't able to get it all and that it was very severe and that I would never have children. I was devistated. A co-worker found the endometriosis association and got me the number. I called them and they actually referred me to a specialist in Chicago Illinois. I went to him, and he gave me great hope. After lots of procedures, hystosalpingogram, more laparoscopies and lupron injections, 3 months later, I had a confirmed pregnancy test. I was also informed that the first doctor told me I would never have children because he put a whole in my uterus and never told me about it, so I was bleeding internally from that. Anyway, my first child was 2 and my husband and I decided we better start trying to conceive again as it took me so long the first time, and the first month I conceived a child of trying. Two years later we were blessed with yet another child. I now have 3 beautiful children. I still suffer from it. I wish you the best of luck and just keep notes of your history and symtpoms etc so that you can be sure you know what is going on with your body. Just know that you aren't alone in this, there are many of us out there that suffer from endometriosis. My doctor described it as 1-5 and 5 being the worst case and i was borderline 4/5, and here I am almost 9 yrs later with 3 beautiful children. Best of luck to you.
• United States
28 Dec 06
thanks so much, this was helpful. i hope to have children but i guess it's different with everyone, i'll do everything i can to havse children. congrats on your brats :) best of luck to you too!
• United States
29 Dec 06
Your very welcome. Yes they are my brats ;). I just want to say I went through what felt like an enternity of testing and procedures. I was committed and determined to have a baby. I wasn't stopping nor was I taking what my first doctor told me as the final answer. I wish you the best. If you ever want to talk drop me a message.
@mtdewgurl74 (18151)
• United States
28 Dec 06
yes, I do suffer from it. also have 2 poly cystic ovaries one almost triple in size. I'm 32 years old but I didn't start having trouble with it till about 10 years ago I have been married almost 16 years and I cannot have children now but the pain hurts so bad somedays I don't even want to get out of bed and if I sit for a long period of time it causes problems also causes my legs and back to hurt most times i have to take pills and lay with a heating pad. And I had to go to hospital for abnormal hemoraging to I refuse to have any hysterectomy because I am to scared. My sister had one and it changed her life alot. I wanted kids real bad but since I cannot hve them I spoil the neighbors and family children rotten.Best part is I can send them home after ..lol My doctor didn't even offer to go through my belly button to do anything I guess where I live they are to many quacks. I should see about that though becuase I think that is something I would do unlike the hysterectomy which is way to much life changing my sister in law also had it. BUt thanks for the info I appreciate it alot.
• United States
28 Dec 06
id definetly go for the laproscopic surgery...mine was just exploratory but i've heard they can help a lot. talk to another gyno about it perhaps.
• United States
28 Dec 06
no i do not suffer from this problem but i understand where your fear is coming from. if you dream of having your own family someday, this will threaten you immensely since this is a big hindrance of probably not having kids in the future. although it is possible to adopt, im sure that is a different scenario altogether. as for your case, i hope everything gets resolved. goodluck!
• United States
28 Dec 06
yeah, adoption is such a good gesture but, it's just not the same as having your own child, perhaps thats why there are so many adoptable children...i might be slefish but that's the way i feel. thanks for your words.
@Bunny2 (2102)
• Australia
28 Dec 06
Oh sweetheart, what aterrible thing for you at such a young age. But there are things you can do for it and ever though you don't want a family now, I suggest you see an endocrinologist now, one who specializes in endometriosis and ask what you can do to minimalize problems in the future. I don't have endometriosis but I do have Poly Cystic Ovarian Syndrome, and often the two are related. I have friends who have had endometriosis and have had a few problems but have had a family. Good luck, honey.
• United States
28 Dec 06
thank you, hope you're doing well. yeah, the two are usually related.
• Philippines
28 Dec 06
wooh i am afraid i have that too because i feel pain whenevr i am tired of walking,oh my god... i am afraid to consult my ob because i am afraid of operation... sigh, what wil i do?
• United States
28 Dec 06
you feel pain when you walk? where is the pain? consult your gyno... and check out your family history.
@bimmer999 (1158)
• Philippines
28 Dec 06
so sad you have that health problem maam.. hang in there..
• United States
28 Dec 06
thank you
• Philippines
28 Dec 06
I know your fear... but let me share this, when I was pregnant for my 3rd son they found a cyst growing together with my fetus so at 5 most it was removed, now my son is a healthy 8 year old boy.. one of my ovary was removed then... after that I still got 2 other kids... now am full hysterectomy, its painful but my life now is much better...
• United States
29 Dec 06
wow, well....congratulations with your struggle and im so happy to hear you're feeling alive again!