Update on My Surgery

@CarolDM (203422)

Nashville, Tennessee

July 5, 2022 12:38pm CST

Checking in to let you know I am still alive from my surgery on Friday July 1st. The Neurosurgeon had to do more than previously expected. Went inside my brain and cauterized (burned) the cerebral tonsils. Hopefully they will now stay out of the brain stem. Lots of pain and throwing up. Was in ICU three days. Came home Sunday night. Sleeping in recliner two weeks. Cannot move my head side to side or bend for at least two weeks. Lots of new meds. Pain killers, muscle relaxers and steroids. Others as well. Hope to finish most of these in two weeks. Return appointment next week for suture removal of my six inch incision on the back of my neck. Head is very shaky as well as hands. Doctor said to take it very slow and easy. Challenging but I will follow his orders. I received a surprise package today and it totally made my day. Was not expecting and will write more later. A few stories to share. I had someone type this for me. Hard to focus with the shakes. This too shall pass. A day at a time. Will post again as I can. And I am taking screenshots of notifications in hopes of catching up when I can. And a link if anyone is interested about the surgery, in case you missed it from my original post.

https://www.mayfieldclinic.com/pe-chiari-surgery.htm

www.mayfieldclinic.com

https://www.mayfieldclinic.com/pe-chiari-surgery.htm

71 people like this

71 responses

@sjvg1976 (41289)

• Delhi, India

5 Jul 22

Happy to see the update about your surgery. Take care of yourself and share the stories once you get well fully.

8 people like this

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@sjvg1976 (41289)

• Delhi, India

5 Jul 22

@CarolDM that's fine

4 people like this

@marlina (154131)

• Canada

11 Jul 22

@CarolDM , can't wait that you feel better again.

3 people like this

@CarolDM (203422)

• Nashville, Tennessee

5 Jul 22

Thanks I will have to take another break now. Just wanted to stay in touch when I can.

6 people like this

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@Chellezhere (5742)

• United States

6 Jul 22

You have been on my mind all weekend. I am so glad you made it through the surgery and are back home. Let your body get all the rest it needs, and (speaking from experience) if you need to type something, try to use voice-to-text instead.

7 people like this

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@Chellezhere (5742)

• United States

31 Jul 22

@CarolDM Take all the time your need to recuperate.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

@Chellezhere Thanks my friend.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

How kind of you to say my friend. A day at a time is how things are here. A long painful recovery as expected. But this too shall pass.

2 people like this

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@FourWalls (68902)

• United States

6 Jul 22

Watch out for The Dude. JJ posted how Scar decided that he (JJ) needed to give blood and started clawing him.

Hope you feel better quickly.

6 people like this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

Too funny. My cats have been a little confused. They are used to seeing me always doing something. Now to see me walking around so slow, they are like, what is wrong with our Momma. That is what I think they are thinking anyway. They notice everything.

1 person likes this

Anne Marie Guyer

@LeaPea2417 (37369)

• Toccoa, Georgia

6 Jul 22

Prayers for you. I didn't realize you were not well

6 people like this

@CarolDM (203422)

• Nashville, Tennessee

30 Aug 22

Thank you. Sorry so very late in responding. I waited over two years to make the decision for surgery. Very difficult one to make.

1 person likes this

@JudyEv (341752)

• Rockingham, Australia

6 Jul 22

So good to hear from you and that things are as good as can be expected. Don't worry about us. We'll all be here when you get back.

6 people like this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

Thank you Judy. Appreciate your kind words.

1 person likes this

Krissttina Isobe

@oahuwriter (26777)

• United States

6 Jul 22

So glad, everything went well. Take care and take it easy, mylot will be awaiting for your return. Holy Christ help you in every way and keep you steady and not fall, thank you holy Christ, amen.

6 people like this

@snowy22315 (181987)

• United States

6 Jul 22

Glad the surgery is over, and I bet you will improve a bit each day

4 people like this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

A long painful recovery but this too shall pass.

@wolfgirl569 (107917)

• Marion, Ohio

6 Jul 22

Glad you are home and the doctors says you are doing good. Just take it easy until you are stronger.

5 people like this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

Thanks Eva. I have learned patience and to slow down.

1 person likes this

@RasmaSandra (80659)

• Daytona Beach, Florida

6 Jul 22

So glad to hear you are all right and beginning the healing journey, Do take it easy and just rest. I am sure that Dude and Brendel were thrilled you were home and I am happy Dude is taking care of you, Blessings to you,

5 people like this

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@RasmaSandra (80659)

• Daytona Beach, Florida

31 Jul 22

@CarolDM I am thrilled to hear from you, Heck, moving slowly is nothing compared to if you had not been here any longer, I sure hope you get back to regular before long, and your cats are lucky you have returned, My kittens keep trying to escape each time I open the front door, but then I pick them up and say what would they do if they did not have Grandmama to feed and love them, Virtual hugs to you and so glad you are home and on the mend,

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

Much appreciated. Your kind words mean a lot and they are much needed. My cats are a little confused as to why I am moving so slow I think. This too shall pass.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

@RasmaSandra Good to see you as well. You have been missed. I know your kitties are growing. So happy they have you and you have them to love. Thanks for your kind words always.

1 person likes this

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Vicki, #1 Creek Girl

@1creekgirl (41692)

• United States

5 Jul 22

So very thankful to hear it went well, but I know recovery will be hard. Wish I were close enough to cook for you. Please take it easy...you know I'm praying God will totally heal you. No hurry about replies.

5 people like this

@CarolDM (203422)

• Nashville, Tennessee

30 Jul 22

How sweet of you to offer to cook. I am doing ok Vicki. Each day another day closer to healing.

1 person likes this

@Marilynda1225 (83074)

• United States

6 Jul 22

I'm so happy you're home. Don't push yourself and rest. Have been thinking and praying for you all these past days. Dude loves his momma!! Sounds like quite an extensive surgery and I wish you as speedy a recovery as can be expected.

5 people like this

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@Marilynda1225 (83074)

• United States

31 Jul 22

@CarolDM just keep in mind how many of us love you. As they say Patience Is A Virtue but I tend to be more stubborn like you. I'm very glad you survived your surgery and that you'll be fine given time.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

@Marilynda1225 So kind of you, I really needed to hear that. Many of you are like family. I am learning to slow down. Your words have made my day. It has been a tough time but better days are coming.

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

Prayers and thoughts are so very much appreciated my friend. I have to remind myself it will take time. I can be very stubborn. But I am learning patience. The surgery was more extensive than planned. But I survived.

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@Deepizzaguy (103991)

• Lake Charles, Louisiana

5 Jul 22

I am hoping and praying that you make a speedy recovery after your surgery.

4 people like this

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@Deepizzaguy (103991)

• Lake Charles, Louisiana

31 Jul 22

@CarolDM You are welcome. Thank you for your support on this site.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

So kind of you George. Appreciate your prayers. A day at a time.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

@Deepizzaguy Always welcome my friend.

1 person likes this

@LindaOHio (181320)

• United States

5 Jul 22

I am so, so sorry that you're going through all of this. I hope you heal quickly and completely and that you have the best doctors. Take care and follow your doctor's orders to the "T". Hugs.

4 people like this

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@LindaOHio (181320)

• United States

31 Jul 22

@CarolDM Praying for you.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

@LindaOHio Much appreciated.

1 person likes this

@CarolDM (203422)

• Nashville, Tennessee

30 Jul 22

Thank you Linda. I have the best team you could ask for. Well taken care of. Recovery is slow but I will get there.

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@MarieCoyle (38569)

•

5 Jul 22

So sorry for all the pain, sometimes it's really hard to cope with it, even with proper medications. I hope you have a good recovery, you have a wonderful attitude. Take care, don't worry about notifications, it's more important that you get well.

4 people like this

@CarolDM (203422)

• Nashville, Tennessee

5 Jul 22

Thanks Marie. I have lots of meds to take and I hope they kick in soon. I realized it will be a day at a time. He did more surgery than originally thought but I am glad he got it all done. This too shall pass.

2 people like this

@MarieCoyle (38569)

•

5 Jul 22

@CarolDM None of us likes surgery and recovery, I know I just dread it. I hope you heal quickly and well, Carol.

2 people like this

@xFiacre (13122)

• Ireland

5 Jul 22

You poor thing @caroldm It all sounds quite miserable and I hope you’ll feel a bit better each day.

4 people like this

@CarolDM (203422)

• Nashville, Tennessee

5 Jul 22

Thanks for the compassion. It was more involved than we thought. But I hope the worst is over. Being home sure helps but the pain is there all the time. Again much appreciate your support I hope this will all pass soon.

2 people like this

@paigea (36316)

• Canada

5 Jul 22

Take care. That sounds like a lot to recover from.

4 people like this

@CarolDM (203422)

• Nashville, Tennessee

5 Jul 22

Thanks taking it a day at a time.

2 people like this

@nela13 (58720)

• Portugal

5 Jul 22

I didn't know about your surgery, I am glad it went well. Don't worry about the notifications, it is important for you to relax and recover now.

4 people like this

@CarolDM (203422)

• Nashville, Tennessee

31 Jul 22

Appreciate your kindness. A day at a time here.

@Kandae11 (55131)

•

5 Jul 22

Wow! I did not think you would be up to posting so soon after. Very happy to see you back, be sure to follow doctor's orders and rest as much as possible. Will continue to pray for your speedy recovery.

4 people like this

@CarolDM (203422)

• Nashville, Tennessee

5 Jul 22

I got some help. They are reading and I tell them what to type. Tried typing but was too shaky.

3 people like this

@misunderstood_zombie (8142)

• United States

6 Jul 22

I'm so glad you are doing so well. Your cat seems to be taking great care of you.

4 people like this

@Beestring (14675)

• Hong Kong

6 Jul 22

Good to hear from you. Take good care and hope you recover soon.

4 people like this